Stem-cell Therapy ---- Lungs

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I was just wondering if anyone in USA or Canada has heard of this and what they thought?  I have talk to a Dr. and a Nurse from the States and they say it does work, but cost a few thousand . No one has called me back in Canada yet. Before I spend the money, just want to make sure it's safe and will help. Thank you in adavance 

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  • Posted

    I'm not that side of the pond but I have read up quite a bit on the subject and I have concluded that, yes, it is excellent ..... for their bank balances. 

    Beware doctors & hospitals trying to talk you into it !

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    • Posted

      I will be !! The balance start at 5.000 and can run up to 12, 000. But if it helps, than it is worth it and much more. Thank you   smile
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  • Posted

    It is in clinical trial stage. Docs. say it alliviate the condition, there are chances that it may reverse the condition but nothing is proven yet. I have read about many people who have gone through it and have benefitted from it. There is no harm in trying. Only we can help the docs and researchers in trying to figure out the ultimate cure for this disease. There is a lot of research going on in this field and I am sure researchers will find something in coming years that can help us all. If you choose to go let us know your experience. 
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    • Posted

      It would be nice, I think I'm willing to give my all. I would like to be around for a long time with my family. Thanks for the info  smile
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    • Posted

      Hi again Patricia:  Please don't take this the wrong way but I'm sure that all of us here on this forum that have copd would like to be around for as long as possible.  You are fortunate that you can afford to put out whatever money it takes regarding the stem cell therapy.  For myself if I ever decided to go that route, and I'm not sure that I would anyway, it would be a matter of taking out a loan to cover the expense.  Problem lies in how I would repay the loan.  I live alone and have no support from family or friends, financial or otherwise.  I live on a small monthly pension.  Sure that I'm not the only one in this position.  So Patricia I do wish you luck if you decide to go ahead with the therapy and I'm sure you realize how fortunate you are to be able to do so. 
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  • Posted

    Hi Patricia:

    I'm in Canada, however, unfortunately can't pass on any advice/info regarding stem cell therapy.  Seems to me that quite a while ago someone did post something on this forum about stem cell therapy, can't recall exactly what he or she said and not sure how you would go about looking it up.  This was kind of a useless comment.  Sorry I can't help you out.  Good luck with it.

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    • Posted

      I was talking to Ontario !! They are aware of Stem Cell , just not for the Lungs.  Hopefully soon the more people who inquire the better.  Thank you  smile
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  • Posted

    I would be very leary about that "few thousand." Nothing in the way of medical procedures in this country costs "a few thousand." when it comes to stem cells, they add on tons of money just because of the controversy in the term, even when using your own stem cells. You don't have insurance here so the sky is literally the limit on what docs charge.

    As to the efficacy of such a procedure, i don' t know. You need to make sure that the doc is licensed with his state specifically for the procedure, whether s/he has ever been sued for malpractice & the result, and what the doc's standing is with local medical association. If the doc is 40 and has only practiced in this state for 2 years, find out where he was before and check all these records in that state, because docs kicked out of one state often set up in another state, sometimes a 3d if they lose 2nd license. If they say they don't need a license, run for the hills.

    Between the ex and me, we've been thru 4 of the best pulmonary practices in a very large city. Not once have any of the docs, nurses, techs or even my ex's online support group mentioned stem cell therapy to either of us.

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    • Posted

      What we need is a person on this site to say they had it and it worked. My Heamatologist who was in charge of my bone marrow stem cell transplant (for lymphoma) says these are all quackery!.  In my case I was give back my stem cells after my white cells were destroyed by chemo and my stem cells rushed to repair my immune system - cancer gone. To put stem cells into a lung where diseased cells are happily frolicking is hopeful.  Thiland seems the best bet - they give cord stem cells as well - but want 3 weeks and still they cannot guarantee anything. I say again I want to hear from a REAL person who has benefitted - if you have, or know anyone, PLEASE post. Meanwhile the most hopeful thing I have read is to take antioxidants such as ataxathin, C and E, glutathione and various herbs - in other words work WITH your body and its healing systems. Exercise is important and CLEAN air (ha ha).

      Good luck everyone. We can do it.

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    • Posted

      Hi Patricia,

      Could you follow up with us?  Did you proceed with stem cell treatment?  I either have slight COPD or asthma along with probable PPFE (pleuroparenchymal fibroelastosis - forgive me if misspelled - not sure if I can even pronounce it correctly!); therefore, I would be very interested in stem cell therapy. Also, oftentimes in the USA, doctors/hospitals will negotiate payment for those without insurance.  And, if it is a clinically trial, there is may be no cost for the medical treatment.  At least this is my understanding. 

      Thanks,

      Cheryl

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    • Posted

      Hi,

      I was reviewing this forum and came upon your posting. First time I have heard of ataxanthin. How long have you taken it, and any side effects? 

      Thank you,

      cheryl

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    • Posted

      ataxathin is an antioxidant - think it may be the red colour from salmon or before that from Krill. I have been taking between 1 and 4 tablets every day (bottle dose is one) no no side effects - my red / purple shiny tounge cleared up- now it just looks normal and t was driving me nuts for six months before that. I'm just trying yo boost my body along - no cake or cookies or soda - water and as many blueberries as I can afford. Frozen mostly fresh sometimes. I recently planted 8 bushes!

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    • Posted

      Thanks very much for your reply. I did read about ataxathin yesterday, and found it interesting. However, I always read about any side effects and become a big chicken about over the counter or prescription meds and end up not taking them. I even struggle with a multi vitamin and its ingredients. I know that sounds a bit over the top, but can't help myself. rolleyes

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    • Posted

      Hi Cheryl

      I'm not speaking up for ataxathin, never heard of it til these entries, but nor am I speaking up against it.

      Here in the States there are tremendous misunderstands about side effects and statistics. When reading about POSSIBLE side effects, one must read the ENTIRE entries on a manufacturer's site for Rx drugs. This will include info on how many people were in each level of the studies. If that number was 1,000 and 10 of them had a twinge of a headache at any point, that headache will be listed -- and then they'll say how many folks in the control group got a headache. If we read that far, we may find that 9 of the 900 in the control group slso got a headache. The percentages are exactly the same in this case which means that those headaches are probably environmental rather than related to the drug. If the drug was tested in Austin Tx, where there are thousands of drug studies annually, it's a miracle to have such small percentages reporting headaches.

      But they have to list those headaches because they were reported by people in the study. Does this mean that we will have this side effect if we take this drug? If we take it in Austin Tx we're apt to get those headaches but it's because we live in a moldy, pollen-filled place where we are lucky if in an entire year we have a total of 30 days when no major irritants register on the air samplers.

      Please don't misunderstand: I am no fan of Big Pharma nor 9f the ridiculous American system of drug studies. Serious drugs sometimes get rushed to market too quickly as may have been the case with celebrex. Some drugs do have massive sude effects. If 10 in 1,000 people in a study suffer kidney problems during the study versus 1 person in the control group, i might think long about whether i really need this drug because kidney damage is serious stuff. If I need that drug I may well try it.

      In reality, I learned decades ago to not read possible side effects before trying the drug. I listen to the doc and my trusted pharmacists if they tell me to watch out for some side effect, but that's it. I understand that statistics mean very little when it comes to individual people, unless 500 out of 1,000 people suffered kidney damage during the study versus zero cases in the equal control group. But such a drug isn't getting to market here unless it is, e.g., a last ditch cancer drug for people whose life expectancy is 2 months without the drug vs. possibly 3 years with it, in which case many of those folks might be willing to accept the kidney damage risk. Still, it's only a risked side effect, not a certainty.

      It is risky for 100% healthy people to breathe the air in most metropolitan areas. It is risky to climb out of bed in the morning as so many people fall down while doing so, every single day. Insurance actuaries can provide the exact risks on that. If we drive a car, here in the US our greatest risk of an accident comes in the 3 miles closest to home, regardless of where we luve, what kind of vehicle we drive, and whether we live in urban centers or the countryside. I'm not letting that keep me home, tho I am especially careful if I'm tired & getting close to the house as the real risk may come in all the thoughts which start crowding our brains as we get close (Gotta remember to send sis a birthday card! Please let the kids not have dragged out every single you with that new babysitter! I hope my husband isn't home yet so I'm the one to pay the lawn mower kids, he tips them too much. Oh RATS, forgot the milk again.) rather than from some magical umbrella of increased risk which covers each of our homes whenever we get within 3 miles while in a car.

      If we let negative risks keep us from doing things, we don't do things. I don't know of a single Rx lung med that doesn't have side effects for someone. I've dropped certain of them which had bad effects for me, but only after trying them - and trying them without reading those alarming side effects. And if the side effects are only listed online on Joe Idiot's blog but nowhere else on earth, no way am I reading that.

      Every food we eat carries the risk of an allergic reaction as do all of our detergents and clothes - wool allergies, polyester allergies, etc. What food can you eat that doesn't carry risks?

      I apologize for the soapbox. It's just that if remotely posdible side effects on multivitamins keep us from taking them, we're in trouble as our food becomes less and less nutritious, either from depletion of minerals from the soil, pesticides applied to crops, or genetic modification.

      I'll stop now😊. I do use glutathione, though I use it for my aphasia. If it may help my lungs, fantastic. I take some vitamins and I use some serious Rx meds; others I wouldn't touch with a hundred foot pole. Right now I'm even taking drugs to which I've had allergic reactions before, but I take a preventive dose of benadryl half an hour ahead because I desperately need this temporary course of those drugs. There's risk in everything.

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    • Posted

      Hi. I loved your informative reply. Thank you. Here is the real kicker:  my brother was in the medical field for many years and basically would tell me just what you have told me. On top of that, I work in a research dept at a major Univ, and read many research/medical articles. Still, I can't help myself. My mother had Alzheimer's, and that is another reason I am so leery about meds. Several can cause cognitive issues. Even the copper and other metals that they put n multi vitamins could possibly cause issues. I'm sure that I make my doctor's just scratch their heads when I start debating whether or not I want to take a medication (you may be shaking your head right now too! smile.   Oftentimes I do not (unless it will most likely cure whatever I am taking it for).  Thanks very much for your reply. Other than my brother and husband, I really haven't talked to anyone else about this. So, I do appreciate your input. 

      Cheryl

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    • Posted

      Well then you definitely know statistics & how to completely understand drug study results. If either of my folks had had Alzheimer's, I'd be wary, also. I've got several friends who lost a parent to Alzheimer's & one who lost both parents, a sibling and her ex to same. My hat is off to all of you for ever managing to get out of bed in the morning! You have so much more fortitude than I've got.

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