Posted , 3 users are following.
I have a chronic dehisced sternm which means it is now open after 4 repairs to rewire it. I had open heart surgery in late 2012 and then I had the rewirings at intervals of about 5 months each. I think I am the only one in the world with this condtion, that whatever strong wire bands they put around the sternum it just opens and the wires stay in situ and cut through the bones. The pain is beyond belief. I have major instability in the sternum with the clicking and sliding and I dont dare lift anything. Shoulder and neck ache all the time and if I do anythng with my arms pain gets unbearable. My doctor says we are waiting for a fiborous union between the bones. It doesnt seem to be happening or it rips as soon as I use it. Makes life difficult! I would love to hear from anyone who had something similar. I would love advice for how to live with this. I feel very lost and would like to know what sort of support I should get to help me manage this. Should I drive? It leave me in pain but gives me the freedom I crave. I also feel much less well than I used to much less stamina. I wonder if this condtion has anything to do with it?
0 likes, 4 replies