sternum been wired 4 times. always opens and bands cut through the bones.

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I have a chronic dehisced sternm which means it is now open after 4 repairs to rewire it.   I had open heart surgery in late 2012 and then I had the rewirings at intervals of about 5 months each.  I think I am the only one in the world with this condtion, that whatever strong wire bands they put around the sternum it just opens and the wires stay in situ and cut through the bones.  The pain is beyond belief.  I have major instability in the sternum with the clicking and sliding and I dont dare lift anything.  Shoulder and neck ache all the time and if I do anythng with my arms pain gets unbearable.  My doctor says we are waiting for a fiborous union between the bones.  It doesnt seem to be happening or it rips as soon as I use it.  Makes life difficult!  I would love to hear from anyone who had something similar.  I would love advice for how to live with this.  I feel very lost and would like to know what sort of support I should get to help me manage this.  Should I drive?  It leave me in pain but gives me the freedom I crave.  I also feel much less well than I used to much less stamina.  I wonder if this condtion has anything to do with it?

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  • Posted

    I believe that in days gone by sternums were not wired up and left to heal naturally.

    A friend who had a lung removed many years ago was in that situation and his still creaks.

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    • Posted

      thanks for the reply, I have been feeling really alone with this so its nice to discuss it.  Are you able to find out from your freind if he can do basic activitiess like minor lifting, and does he find it often rips open?  Do you think he might be willing to be in touch with me via email or phone? I have so many questions to ask if he is willing.  If not thanks again anyway.
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  • Posted

    So terribly sorry to read of your painful plight.  Cannot offer any help or suggestion but do so hope it all knits together before much longer. Best wishes, George.
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