Steroid Inhalers
Posted , 7 users are following.
I wondering how steroid inhalers like Folvent work for you people on this site. I'm not sure I notice any difference.
Russ
1 like, 21 replies
Posted , 7 users are following.
I wondering how steroid inhalers like Folvent work for you people on this site. I'm not sure I notice any difference.
Russ
1 like, 21 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
peter15508 Russell27NOLA
Posted
I was diagnosed with Bronchiectasis when i was 50 but pretty sure i had it a lot longer always having chest infections out of breath for years and i mean years i take nothing i just do a lot of hillwalking think exercise is the best thing do out i still get out of breath but just carry on.
[list=1]
[*] [url=https://patient.info/forums/discuss/browse/bronchiectasis-254] [url=https://patient.info/forums/discuss/browse/bronchiectasis-254]
[/list]
Russell27NOLA peter15508
Posted
Russ
peter15508 Russell27NOLA
Posted
Regards Peter
steve62514 Russell27NOLA
Posted
I take Symbicort, which is part steroid (corciscosteroid) to reduce inflamation and part beta agomsist to open the airways and improve breathing.
In part I agree with your observation Russell as I do not notice a huge difference if I forget to take my morning or evening dose or even both (the latter is not common, but I often forget my evening dose if I'm out and about or even at home on te laptop or wathing TV. I get to 11pm ish and realise I forgot.
For that reason when my chest is feeling particularly well I do quite often cut the morning or evening or both doses down from 2 puffs to one. Have also experimented with cutting out altogether but after say 3 days I realise my chest feels like it needs it again. That stuff is bladdy expensive (I'm non-resident Brit now) but I don't want to short-change my feeling of well-being. Some pulmos in Thailand have told me I could/(should?) cut it out - it's not even really designed for BronchX sufferers (rather its an asthma mainstay I believe). I think I know my body best though. I tell my UK pulmo at Papworth my doses every 6 months I go for a check-up and they have never told me to cut it out; rather they tell me that my lung function is still pretty good.
Russell27NOLA steve62514
Posted
Steve, thanks. I had taken Asthmanex for years and was paying $180 for a three months supply with my insurance but for some reason, and I think it's becasue Trump is president and now Big Pharmo thinks the chains are off, so now the Asthmanex is $600 for a thre month supply.
But back to the point. I don't notice somuch difference being off for several days. As you said it's an asthma drug and my asthma has been controlled very well for years. I have to think about this more and get more information.
Thanks
Russ
mary08543 steve62514
Posted
I take Advair rather than Symbacort. I do have asthma as well as BX but I've had good luck with it using it twice a day
steve62514 Russell27NOLA
Posted
charles97600 Russell27NOLA
Posted
Hiya,
I Ditto what Steave has said I take Symbicort also,so I really don't know the one you are using,feel I could stop it all together at times as I do for days and must say I don't feel any different off or on it,it's the AZ that has made such a big difference for me
Russell27NOLA charles97600
Posted
Russell27NOLA charles97600
Posted
Charlie, Iv been thinking of going to Mayo Clinic, voted the best in US for Plumonary Disease. I have not seen a doctor yet, but recieved a comment from one of the patients at Mayo. Whay follows is an excert:
I started seeing my doctor there in 2013 whereupon he said NEVER take
azithromycin again! His reason was because it is considered one of the more
potent drugs they use to combat our MAC, and he didn't want me to build up a
tolerance for it. He said I may need that BIG GUN some day. In 2013,
I was put on a prophylactic of alternating month of Cipromycin and
Doxycycline, both on a 10 day course. (no salt treatments) Then I got a
positive test for MAC colonies and Pheudomonas bug of some sort in 2016. I was
then taken off of the doxy and it got replaced with tobramycin (28 day
course) and stayed on cipro(10 day course) on the alternating month. Plus
added the salt nebulizing treatment. All coughing ceased in August 2016 and I
feel like a normal healthy person despite having very little lung function left.
Now, I battle with fatigue. Hope this helped.
Have you heard of this way of using antibiotics? Do like the idea of not using AZ forever and creating super AZ Bugs.
Russ
charles97600 Russell27NOLA
Posted
Makes sense I will show this to my Doctor and ask the same questions but you said that was told to you in 2013 to get off but you are back on it again as I thought from past Replies?
Going to Mayo is a good start,it will be good to find out what they say keep us all poasted and Thanks for the update.
Best,
Charlie
Russell27NOLA charles97600
Posted
Best
Russ
Russell27NOLA charles97600
Posted
Charlie,it will be interesting to see what your doctor says.
I came across a study that seems to suggest that the effects of the AZ for a 6 month study seem to last for a full six months after the dosing is complete for some patients.
DR CONROY WONG, OF AUCKLAND'S MIDDLEMORE HOSPITAL IN NEW ZEALAND, EXPLAINED: "VERY FEW EVIDENCE-BASED TREATMENTS ARE AVAILABLE FOR THE PREVENTION AND MANAGEMENT OF BRONCHIECTASIS EXACERBATIONS, AND MORE ARE URGENTLY NEEDED. OUR RESULTS SHOW THAT AZITHROMYCIN TREATMENT FOR SIX MONTHS DECREASES THE FREQUENCY OF EXACERBATIONS AND INCREASES THE TIME TO FIRST EXACERBATION. THESE BENEFITS SEEM TO PERSIST FOR SIX MONTHS AFTER THE TREATMENT IS COMPLETED, SUGGESTING THAT AZITHROMYCIN COULD OFFER A NEW TREATMENT OPTION FOR SOME PATIENTS WITH BRONCHIECTASIS." I think that I have been under impression that the AZ traetment is for life.Are you taking the AZ intermittenly on a six months rotation.?
Russ
charles97600 Russell27NOLA
Posted
Hello Russ,
Interesting,as for me I will be on AZ one year as of Tomorrow doing the 3 day routine,with no side effects at all,I return to the states on the 1st of June see my doctors within the 2 weeks back so I plan to bring this up with them and see what they say will let you know.
To say the least I really don't want to get off to even test it,to see if I go back to like it was before,because that was the pit's,before.
I seem to have it under control now still do everything else with it and so i can deal with it,still not fun but liveable.
Best,
Charlie
Susanne_M_UK Russell27NOLA
Posted
I'm on Symbicort too. I was diagnosed with BX in December 2016. I've not noticed it making any difference to my breathing. It feels just the same before and after using it.
Russell27NOLA Susanne_M_UK
Posted
Interesting isn't. Im going to talk to my doctor about it. Good to hear from you.
Russ
Susanne_M_UK Russell27NOLA
Posted
aitarg35939 Susanne_M_UK
Posted
Russell27NOLA Susanne_M_UK
Posted
Russ
Russell27NOLA aitarg35939
Posted