Steroid injections
Posted , 9 users are following.
hi all,
i was told by my consultant that he is wanting to go down the steroid injection route as although the betahistine dose has reduced the severity of vertigo attacks it has not resolved the problem.
i am just wondering if anyone has had steroid injections rather than gentamycin and how effective have they been?
many thanks
sarah
0 likes, 13 replies
john02577 sarah87228
Posted
Hi Sarah
I've had 3 steroid injections last year that was over a 3 week period it was predisolone .
My vertigo and sickness was greatly reduced but I was unsteady and balance was really affected so the injections worked in some ways but did not give me the confidence
Good luck Sarah
wendy96032 sarah87228
Posted
hi Sarah
I Personally haven't had the steroid injections yet, they are next for me. I have a second grommet fitted but ive been having attacks again recently. My ENT has put me on a week of high dose steroids to try and help. A friend I know with menieres has been having the injections and shes been pretty good. Good luck hun its an awful disease to live with. Wendy x
NeddyO sarah87228
Posted
You do not say what betahistine dose you have been on. I was put on 48mg tds which gave me nearly 2 years remission. When symptoms returned I started on 48tds again but had to increase it to 64mg tds which did the trick and I have been symptom free apart from residual tinnitus for 30 months now! Incidentally my consultant said I could go to an even higher dose if necessary.
sarah87228 NeddyO
Posted
i am on 32mg tds and have been for 6 months now. my consultant has refused to increase the dose any further which was disappointing as i have had a lot of success with it
Bluesmann sarah87228
Posted
i would ask about increasing the betahistine before gwtting the injectionsI got them they worked for a while but the beta Histine has been a much better source of relief
sarah87228 Bluesmann
Posted
i have on two occasions but my consultant has said he does not see that higher doses are successful which i questioned but he still refused to prescribe a higher dose.
i would rather an increase in medication
tanney sarah87228
Posted
Sarah, do you know what triggers your vertigo symptoms? Is it sodium, caffeine, allergies, stress, a viral infection? There is usually something that brings on MD vertigo episodes. In my case it is allergies. I very carefully manage my allergy symptoms and I notice my tinnitus and ear fullness are significantly less when allergies are under control.
I've had steroid injections (only very temporary relief), I've been on 16mg/4x day of Betahistine and my vertigo has been eliminated. 40 years ago I had gentamicin injections in my left ear and it completely eliminated the vertigo from that ear. I take the betahistine for the right ear (I have bilateral MD) symptoms. I can provide more info for you on my experience with gentamicin injections if you are interested. I can message you privately. Let me know.
Good luck!
sarah87228 tanney
Posted
ive been trying to figure that out for a good year now.
i know stress is a major contributing factor but sometimes its not that. i cant figure out what it is and it is draining
Bluesmann sarah87228
Posted
tanny did tje gentamiacin destroy the hearing in thast ear?
tanney Bluesmann
Posted
Hi Bluesman. NO, the gentamicin did NOT destroy hearing in my left ear. In fact my hearing has improved a little over the years since then. I probably now have 65% hearing in left ear which is more than I had just before the procedure. Now, everyone is different and my experience may not duplicate others. For those of you seriously considering gentamicin injections, please try every other non invasive procedure first: diuretics, dietary changes, and various doses of betahistine. Also check for allergies and viral causes. If after all of these efforts you still have uncontrolled episodes of vertigo then find the most experienced neurotologist and discuss gentamicin with them. Ask a lot of questions. Gentamicin successfully eliminates MD vertigo in about 85% of patients. Some patients, though, may experience additional hearing loss....most do not.
Womanofthewoods sarah87228
Posted
i have the bilateral vestibular type of MENIERS. i have had it about 4 years and a few months ago I had a series of 2 shots and I have my life back! IT HAS BEEN THE BEST THING FOR ME!!!! Im so sorry that you have this crazy disease but there is hope! I WISH YOU WELL!!!!
sarah87228 Womanofthewoods
Posted
i am so pleased for you!
it is so lovely to hear that some people get relief
linda40945 Womanofthewoods
Posted
That's great for you! Were you referring to gentamycin shots?