steroid therapy

Sorry for your situation, I really know what you feel, trust me, I passed through it. I was treated only 1 time with steroids at the beginning of my desease, and only to switch off the acute inflammation. From my personal experience and researches as patient (diagnosed in 2006) I found that steroids as a cure at first can help you for an acute episode, but finally they have the effect to further expand the desease and create a favorable ground for more frequent flare-ups or worsening. Hence I would not recommend steroids as primary cure.

Did you think about alternative cures, such as a holistic approach, perhaps changing your diet , adding some exercise routine, taking some good food supplements? You might contact a good therapist, explaining him/her your current situation and evaluating the advice.

F.

hi i also am on steriods but was put on them after being told i had polymyalgia and gca. after 2 months on 60mg per day and symtoms getting worse i am now told its not polymyalgia but possiblily ms so i have been slowly decreased the dosage now down to 17.5mg a day. how much steriods have they prescribed you?

I have had ppms for 33 years.Steroid therapy has many ill effects and is seldom used for ppms. it causes weight gain,acne,possible damage to a body that needs  more rest to heal and recover,not forced exertion. based on cortisone.Best treatment is high dose vitamin D3 10,000 iu daily and a high oily fish,dairy free diet low in simple carbohydrates and sugar.I have taken this  combination daily and very safely for over 5 years. This seems a lot compared to the foolish 400 iu of vitamin d which was only meant to prevent childhood rickets,but is very conservative in amounts  compared to the new discovery by a Dr Cicero Coimbra, a neurologistfrom Brazil who says that 10,000iu of vitamin D3 merely keeps it in check, and prevents it ocurring in family members,but that huge amounts,even 60,000 iu,individually prescribed for each patient by him and taken for life gives patients back their life.He has done just this thing with thousands of his patients in Brazil.They have their own Facebook page and are on Youtube trying to spread the message abroad.Two other clinics have followed his example,one in Portugaland another in Italy. see for yourself.Google Dr Cicero Coimbra or Brazilian doctor uses Vitamin D to giv M.S. patients back their life or google vitaminDwiki and read about all the latest developements.

I have had high dose IV steroids 2x in 7 1/2 years. The first time was 1 gram IV for 5 days. I couldn't sleep, my body was convinced I was starving all of the time, and my neuro forgot to give me a steroid taper, so I ended up with roid rage on top of it all. I totally agree steroids are only for acute flair ups. If you truly have PPMS, which is very rare, there are no approved treatments as far as I know of. There are some trials in Germany and Switzerland that filter and reset your white blood cells. There is also stem cell therapies. Being in the USA there are no such options for me. Talk to your neuro ask him what he would do in your position, and get a 2nd and even a 3rd opinion if you don't like the answers.