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I'm new here. I was diagnosed with BX and also rampant Aspergillus about this time last year. It sort of came on suddenly so I had all the testing and the name was given to the condition. I'm aged 66.
So I've always tried to manage my chest with an inhaler and ABs when necessary.
Last year I noticed I was getting breathless walking up hills etc.
Thankfully I had good treatment which cleared my body of the Aspergillus. The BX was harder to get under control. I was taking Prednisolone from November until end of January and then on and off until end of April.
I've been struggling since mid October with 'should I shouldn't I' see the doctor with the breathing difficulties. I relented and started myself on a course of doxycycline & prednisolone for one week. The doctor said afterwards there were no crackles and suggested I try Mucodyne. That just made me feel like I had a bad head cold so I didn't continue with that. I should add that with my BX I don't have any issues with excess mucus and coughing.
I so detest that steroid treatment because of the side effects....sleepless nights, swollen face and swollen cold knees but I'm told there is nothing else that deals with BX.
Have others found this?
Thanks for any help and advice.
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