Posted , 6 users are following.
Hello my doctor told me that if a diuretic pill didn't work than the next step is steroids. Did anyone try these and for how long ? Also is there weight gain? I have no clue how this effects body all I know is that long term could be bad.
0 likes, 8 replies
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Bluesmann yvette1988
Posted
angela84522 yvette1988
Posted
chris86405 yvette1988
Posted
I was put on steriods when I first saw my new ENT for a short time. he thought it would stop the constant attacks I was having. It didn't. He also didn't want to put me on a diuretic unless very necessary. He said it has too many side effects. Low salt diet, figuring out what your triggers are (dairy is for me) all helped but it didn't go away entirely, and now the upper cervical chiropracter seems to have stopped it.
eleftherio33095 yvette1988
Posted
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
jacki999 yvette1988
Posted
There's an algorithm of drugs used for Ménière's
Diuretics, Steroids are the beginning - I tried them both for a couple of months - didn't help after initial 2 few days.
Diet reduced salt all contribute - alcohol and activity all play a part
Dependant on how the illness is effecting you will depend on the line of treatment
Hope it helps x
angela84522 jacki999
Posted
Hello Jack, I have a friend that has MD as well aND like you her MD was too far along to get relief from diuretics and diet. Her ear has filled up with the crystal's really painful. Extremely inflamed. She is going in for Surgery. I hope you get some relief.
jacki999 angela84522
Posted
Tk u - I'm booked for a grommet tomorrow after two wks of not being able to stand up - then I'll purchase a Meniett
today is a good day.
Best wishes x
JMJ yvette1988
Posted
Hi yvette,
Sometimes I get confused during these discussion re: steroids because people forget to mention the route by which the steroids are being administered. There's a big difference between taking steroids orally, and getting steroid injections into the middle ear, for MD. The differences in action, effectiveness and especially side effects, are huge.
Oral steroids can have severe side effects, and Yes, weight gain is one of them. Steroid injections directly into the inner ear, on the other hand, have very few potential side effects. There is no weight gain, and there are no systemic effects: They inject a tiny amount of the steroid into your inner ear, and it's absorbed right there. It's not unlike when a doctor injects a steroid iinto an arthritic joint (except based on my own experience, the ear injection is a LOT less painful!! Trust me on that one!!)
I have had steroid injections for a very severe case of MD. I had been experiencing back to back episodes of vertigo, vomiting, tinnitus and severe hearing loss for a solid year. After 9 injections, I had 16 beautiful weeks of freedom from vertigo. But then, a few nights ago, it came back. I was told ahead of time that it may or may not get rid of them entirely, but you know: hope springs eternal! So now, I have an appointment for another injection in a week. It's my hope that it will do the trick for a few more months.
Unlike Meniere's disease as a whole, the steroid injections really aren't anything mysterious: The inner ear contains a very complex structure called the labyrinth (that thing that looks like a snail). When that structure gets inflamed, it causes vertigo. So the theory is that when you inject that structure with steroids over time, it will stop the inflammation response, and stop the vertigo. For me, it worked. Temporarily. But I don't mind if I have to go for injections every few months in order to stay vertigo free.
The thing I now realize is that the steroid injections do not "cure" MD; they simply have the potential of reducing the intensity and the number of episodes of vertigo...and even eliminating them for a period of time. The injections have not had any effect whatsoever on my other ear symptoms like tinnitus and hearing loss.
The injections don't replace the other components of an MD treatment regimen - they are an addition: I still take diuretics and keep to a low salt, low caffeine diet. I try to stay well-hydrated and keep my fluid intake pretty even, each day.
Just one other note: It took me 9 injections to get relief, but most people report significant relief after 2 or 3, so don't be discouraged by hearing my story!! I would still encourage anyone who has the opportunity to have the injections, to give it a try. It really doesn't hurt, and to be vertigo-free for any period at all? Well, for me, that's life-changing!
I wish you the best of luck!
J-