Stiff neck

Posted , 8 users are following.

I've had PMR for about a year and I'm down to 5 1/2 mg of prednisone. I only had a slight flare at 8 mg, went up to 10 and slowly came back down. All has been well, until I developed a stiff neck last Sunday. I don't think it's a flare because it's only stiff on the right side. My neck has been cracking so I'm thinking it needs an adjustment! Any thoughts on this? Please don't say it's a flare! I've been doing so well😄!

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  • Posted

    When I got Hashimoto Disease I had pain on one side of my neck and behind my knees. My doc said it was from the inflammation. After I started the thyroid meds the pain went away. When I started with PMR the pain started in my wrist. So I can always tell when I have inflammation starting up again. I don't increase my meds, and it usually goes away.
  • Posted

    I did write a post but gone missing😳

    I first started off with pain right side of neck kind like a creek in your neck, when you turn your head it hurts, and flu like symptoms, and developed pains in my thighs till I couldn't walk that was 16 months ago.

    I was diagnosed with PMR by rheumatologist and put on 20mg pred, after 2 weeks I was told to reduce and was down to 12.5 mg in 8 days, that's when I got jaw pain and arteries visible at side of temple sand headache, and thanks to the lovely people on this forum and Eileen, because I had never heard of PMR or GLA, they told me to get myself to A nE which I did,

    I was admitted and had positive biopsy for GCA and my dose was increased to 60mg pred and was fine was discharged after 4 days, my CRP down to 13.

    But next day severe headache, so back to hospital and they didn't seem to want to increase my dose so prescribed pain killers, didn't work, I was crying with this headache, after a week I lost the sight in right eye but it returned after 15 mins it was most frightening experience of my life, I had 3 episodes of this, so back to hospital they increased my dose to 80mg and they did an eye exam and said it was ok, so I felt so lucky, I was fine then,

    I'm down to 9 mg and fine except my neck pain which came back but don't know at what dose it came back, it is back since about last October, when I was down to 10 rheumatologist told me to go back to 12.5 for 6 weeks but made no difference, it's not that bad and goes as day goes by about 6 in evening but still worried what is it? My cracks as well if it's any help to you. Good luck

    • Posted

      Just one word to you , Elizabeth , be careful, careful, careful with the tapering you will do and observing every symptom you have.

      Wish you have a positive outcome!

      🌺

    • Posted

      Thank you so much for your concern, iellen its a very frustrating disease. I have regular blood test, CRP seems to be a good indicator for me, so I'm watching that, when I left hospital it was down to 13 but when I developed the headache it went to 105 thanks again and hope your doing ok x

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