Still convinced i have als/mnd

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After having an appointment with a neurologist and letting her check me over i still think i have als as my left arm and leg do not feel right. It feels as though my arm amd leg dont wamt to work. I know its rare to develop the disease at a young age but its still very possible. I cant go back to the doctor as they will send me home bevause i previously kept going about brain tumours (my arm wasnt right then either) anyone have any advice 

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6 Replies

  • Posted

    Hi Emily, the neurologist has ruled out als/mnd as your arm and leg are working fine as such the problem is that you "feel" it isn't which is a psychological matter and not a physical matter.

    The only advise I can give is to push for your health anxiety to be treated properly.

    Neil 

     

    • Posted

      But they couldve completely missed it.. I get aching in the back of one calf and twitches in the same leg, especially in my foot. These are all sigms of als 
  • Posted

    They're also all the signs of Anxiety. I know it's hard but try not to think about your symptoms and try to relax. Once u get your head around that its all stress /Anxiety it will eventually go away. You have to accept the anxiety in order to move on....You are not alone and we are always here to re assure you.  The doctor wouldn't dream of giving u a clean bill of health care if there was even remotely a small percentage something was wrong. They would have admitted you and ran further tests. In our day and age " Blame Culture "  too much is at risk, As in compensation for mis diagnosis, They would check every avenue before they sent you home. You are a healthy 16 year old. U shouldnt have a care in the world. U go out and grasp all of the wonderful things life has to offer...xx
  • Posted

    hi emily. Back in june this year i was getting the exact same symptoms as you! like yourself i'm only young and have looked into als as being a prime cause. However it occurence of something like this is extremely uncommon. The neuroligists know what to look for as they specialise in this field. I know this might sound bizare and you may think i'm wrong, but i can almost garentee that you're experiencing acidosis caused by cronic hyperventilation. Most of the time we are unaware this is happening as our mind is obsessed with other thoughts. This isn't dangerous so don't be alarmed. It is very normal and it does pass. At the age of 22 and suffering since i was 14 i can empathise to how this can affect our youth in so many ways. Stay strong and keep positive. I went through a 2 year period with no councelling or medication without a single attack. These things come aand go annoyingly but as time goes on you recognise the common symptoms and they become more of a bore. Hope you feel better soon 

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