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I'm a 35 year old lady who is at the end of her tether.
I had a flu bug back in March, since then I've been having horrendous dizzyness and vertigo. It's worse around my period, when I basically don't get out of bed but I also have good days where I just feel a little bit drunk and uncoordinated- does anyone else have this?
The GP initially said it was labyrinthitis but after much pushing I was referred to ENT who have basically cleared me of any ENT problem after vestibular testing. I've had an MRI scan (still waiting the results, but no news is good news). I've now also seen a neurologist who diagnosed me with central stimulation syndrome- but according to google this doesn't exist.
I've been on amytriptaline for the last few months with little improvement but the neuro has asked me to increase the dose, which I'm doing.
I've been off work since March as driving is difficult, and sitting at a computer is impossible when I'm in my worst phase. Work are obviously keen for me to return to work but I don't see how I can when I know I'm going to be too ill to even get out of bed for at least 2 weeks of every month.
All of this leaves me exhausted and at my worst sleeping for 20 hours a day!
Sorry for the long post, but I'm rapidly loosing the will to live 😪
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