Still fumbling in the dark about treatments for LS
Posted , 8 users are following.
I have been diagnosed with L S 8 yrs ago I still feel as if I am fumbling in the dark. There dose not seem to be any clear treatment path to go down. I asked the doctor how far advanced my symtoms were and she said it varies from one person to another. After reading the latest on HRT I was wondering if it's worth giving a try to see if it made any difference. I am 68 yrs old
0 likes, 6 replies
andrea58721 Pitta
Posted
I'm 66 and have had LS for about the same length of time as you. I find the doctors frustrating, and I know they find me frustrating too because I'm always trying different things - diet, healthy creams. Changing my diet was a good one. Vitamin creams were good for a while, then I couldn't use them because eventually they'd cause a flare reaction.
I keep trying because I think that cortisone is not a treatment. It deals with the symptoms but it does nothing for what's causing the disease and it thins skin that's already thinning.
I tried testosterone cream once - didn't work. More recently I went to an acupuncturist because I read somewhere there was some good work being done with LS there. I left off cortisone for three weeks and used the stuff from the acupuncturist and the LS got worse. I think he was a fraud, to be honest. If I were to do it again, I would look around and talk to a few acupuncturists before I went ahead with anything.
So my recommendation would be: talk to a few different doctors before trying anything.
All the best with whatever you decide to do!! It's an interesting, sometimes crazy journey, isn't it?
Andrea
Morrell1951 andrea58721
Posted
andrea58721 Morrell1951
Posted
Stress - huge factor for me. Stress=inflammation, which can be throughout the body. Ending a difficult relationship is good....
suedm Pitta
Posted
I am also coming around to thinking that our DNA will make us more suceptible to autoimmune conditions and that it is worth while to have a genes test to discover WHAT our individual vulnerablities are. One sensible person said that while we cant change our genes we CAN change the way they operate - ie by our diet and our behaviour (stress management etc)
There are on line sites that will undertake gene testing however if you can get it done by your GP referral to a genetics clinic so much the better - it will make the explanation of how to manage the information so much better.
in the meanwhile i imagine you have seen the Dr Goldsteins webinar- that is the most detailed protocol the medics have come up with to date. However Do check out the methods others have found to help manage their conditions
Good luck
jackie73005 Pitta
Posted
hanny32508 Pitta
Posted
Dr Goldstein sheds some good light on things. Though I had to watch it several times to really absorb what was being said and shown.
Going over various comments from people, I think you can detect similarities. We are not as different from each other as one may in first instand think. It just is often a different way of expressing, yet, boils down to the same.
I still use hormone replacement and think it is beneficial to me. I don't, however, use premarin. That one drove me literally and figuratively bananas. I use a different one called Bi-Est (estrogen, just a very small drop each day in the morning) and Progesterone (small capsule) every evening. (My age is 65. Due to hysterectomy I had an instant early menopause at age 42) I have been using the hormone replacement since I have been trying to get a handle on LS. I have noticed that I benefit in other ways as well. More strength while doing yard work for instance.
Furthermore, I think that it is 'the whole package' that has made my living with LS manageable - glob, HRT, baking soda baths and rinses, coconut oil, diet (no sugar, no alcohol, no gluten, limited dairy)