still in pain

Hi Sandra. I have tried to get an appointment with a vulvar dermatologist but she’s not taking new patients. We have Medicare where I live, so you don’t pay for health care unless the doctor is private. I even tried to see one in another city where my daughter lives - no luck. It’s really disturbing 

When I see my dr on Wednesday I will ask her about yeast - I was never tested for that. Aren’t there symptoms with yeast infection?  

Yes there are symtoms with yeast, but are very much like LS; itching burning and some women have a discharge that is like cottage cheese or clear.  I have no discharge with yeast, therefore causing a misdiagnosis 3 times.  I now request the Dr to do a test for yeast to make sure.   Just in Nov my Gynicologist said no yeast.  I saw another Gynicologist she tested and yes it was yeast. I know the yeast caused my LS flare up.  Yeast also spreads if not treated.  I had it spread all around my anus because it was misdiagnosed.   You may not have yeast, but maybe want to make sure it isn’t present along with LS❤️❤️

PS:  I don’t know where you live, but I found a Vulvar Clinic by searching on line for Vulvar Clinic or Vulva specialist in my area.  I have an appointment in May to see a Gynicologist that specializes in diseases of the Vulva.  It is a long time to wait, but seeing the right Dr that is going to follow up with you and note any changes in scaring is so important.  God bless😇😇😇

I will d finitely ask dr to test for yeast. I have no discharge but itch and burn and anus as well 

I have searched everywhere on line for vulvar specialist in my city. I like in Canada. It’s ridiculous that the doctor I did find doesn’t take new patients. I s by her 2 mails. No answer. That’s not a decent person by any means. 

If my dr can’t help me wed I will ask her to get me appointment with someone who can 

Arlee when my Gynocolgist did the biopsy she gave me a topical numbing cream that really helped.  She understood the disease and gave me literature on LS.  She was able to recognize it visually, but wanted to make sure,  The difference is I had a tear that would not heal so a biopsy was necessary.  I am at a point I need to see a vulva specialist

Is there a Hospital University in your area?  I don’t know if that is what they call them in Canada.  The one I am going to go to is in Portland Oregon.  It is a 2 hour trip one way for me, but worth the time.  

When you talk to your dr on Wed tell her about the vulvar specialist you found that doesn’t take new patients.  Most of the time your doctor will call that specialist and get you in.  It is worth a try.   That has happened to me and my husband before and our dr was able to get us in even though they were not accepting new patients.

Thanks Sandra. Yes I will definitely tell my dr about the specialist. I even tried to go to a Vulvar dermatologist 1 hr plane ride away, where my daughter lives. No luck there either. It’s very frustrating 

Did you hear from me???  

That’s exactly what I’m good ng to do today. I have a sitz bath but I never know how much baking soda to use. Less than a bathtub I’m guessing? 

Hi, I have one of those portable bidets that I sit on top of the toilet. I use a tablespoon of baking powder.

That’s what I have. U mean baking soda?!!

Sorry Arlee, I meant baking soda.

Thanks for the baking soda advice Hanny it has helped me so much I can’t believe the difference it has made, I sit in my portable bidet twice a day for 10to 20 minutes, relax and read and have noticed such a diffference to how I feel, so soothing.  LS still present but I feel it is a step in the right direction to having some control over the symptoms.

I'm glad to hear that the baking soda has helped you.