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still in pain

Posted , 8 users are following.

arlee
arlee

My urogyno told me in October I had LS because of change in architecture 

She prescribed clobetasol and I used it twice daily for 5,weeks. I saw her again in November and she told me to use Clob once daily and zinc cream for barrier. She changed my hormone cream as well. I’m seeing her this Wednesday and not feeling very confident  she never did a biopsy. I’m reading that many ladies here had one. I still have burning and pain and sometimes itchiness. My anal area burns as well. I don’t have white patches. This whole situation has me feeling very down because I can’t see myself ever improving. 

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  • debi14820
    debi14820 arlee

    Posted

    I've gotten some information from the Department of Health and they say it's not required to get a biopsy. Gyn doctors can diagnose by looking at the skin IF there are white crinkly patches present. So the short term pain of a biopsy can be skipped if the Gyn is positive it's LS.

    • arlee
      arlee debi14820

      Posted

      The reason my gyno didn’t do biopsy is the fact that I was so irritated it would only make things worse. 

      I saw her this past Tuesday because I tested positive for yeast. Now she said she’s not firmly convinced I have LS 

      This can make a person crazy! 

      So I’m using cream internally for 6 days. If that doesn’t improve I’ll go back to dr and I will need to have colposcopy to closely examine me. 

      Hard not be stressed! 

  • Guppy007
    Guppy007 arlee

    Posted

    Hi arlee, if you do some digging around on Google you will find that LS and Candida often go hand in hand for some people.  Almost every time I have had a flare up I have had a yeast problem.  The yeast problem (thrush) brings on the LS flare up I think.  This is why I take a Diflucan every 4 months to avoid a LS flare up.

     

    • sandra52875
      sandra52875 Guppy007

      Posted

      Hi Guppy I am in the middle of a flare up,  The first one I have had since I was diagnosed 3 years ago with LS.  This flare up is do to a yeast infection which I took Diflucan, but also had to use yeast cream on the skin.  My question is when there is a flare up and after yeast infection is cured, do you go back to using Clobetasol daily and if so, for how long.  Up until the yeast infection and this flare I was on a maintence program using Clob 2 x per week.   I have gone back to using Clob every night, but not sure for how long.  I
    • Guppy007
      Guppy007 sandra52875

      Posted

      Hi Sandra, I once had systemic candida (thrush) and I had to take 2 Diflucan tablets three days apart and use the oral stuff to gargle with to just get rid of it.  It is important to make sure you are completely rid of it or the LS won't go away in  my experience.  Just make sure your tongue isnt white. 

      With regard to maintenance, we had this chat the other day on here.  Some folk believe in maintanence, usually using the cream once or twice a week and some people dont.  I am in the second camp.  I think once you are free of LS symptoms (flaring) then you should just carry on eating well and avoiding too much sugar.  But, you have to do what you feel is correct for you.  Bearing in mind that you are hopefully coming out of a flare I think I would use the cream three or four times a week for a week and then maybe back to what you normally do which is twice a week...as I said its all about individual choice.  I think for many people they dont like the idea of applying such a strong steroid when there are no symptoms of a flare-up.   

      Remember, we all flare at some time or other and all sorts of things trigger that, but I do believe its usually sugar overload, or medications that kind of thing, and not whether we did or did not use the Clob that week...

    • sandra52875
      sandra52875 Guppy007

      Posted

      I have taken 6 Diflucan since Middle of July when I was in hospital on antibiotics.  Still got yeast.  Recently took Diflucan in Nov.  Dr. said she wouldn’t prescribe any more for awhile since it is so hard on the kidneys.  I will go to every other night with the Clob. Have an appointment in a couple weeks with a Specialist.  It can’t Come to soon.   I do limit my sugar, take probiotics and eat tuns of yogurt.   Thanks for your help Guppy. We are all in this together.  
    • Guppy007
      Guppy007 sandra52875

      Posted

      Look online and google Water and Milk Kefir it has MUCH more probiotic strains in it than bottled probiotics or yogurt.  Hang in there.
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