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hi its been awhile since ive been on this forum my health has been realy bad and ive been in hospital twice ive still had no luck getting my doctor to re-reffer me to infectious diseases ( referred to two 1st dismissed it without seeing me 2nd urged my GP to refer me to a local ID specialist-this didnt happen) I have had a possitive result but its only co-infection which hasnt been taken seriously. Im seeing a new neurologist on monday but i dont know if its even worth mentioning lymes to him. My GP does recognise the neuro symptoms- now so bad i can hardly move my head, legs giving way,co-ordination gone,nerve pain and body jolts (recent MRI scan showed cyst on brain) all my symptoms are worse than when i began to post early this year my doctor thinks maybe ENT or even autoimmune disease. I dont get why no one will take the fact it could be chronic lymes seriously but will send me to countless random specialist- GP keeps saying ive had antibiotics and i must admit ive had two 5 day courses of amoxyciline and a 2 week course of doxycycline in the last 5 week period for a chest infection that wont clear up so i suppose GP is thinking ive had lots of courses of antibiotics. if this isnt lymes i dont know what if could be the only bloods and ive had many test to come back raised are ESR 29 and IgE High cyst found in brain and stomach also enlarged saliva glands and sinusitus - any advice welcome as always and thoughts on other possible conditions please -vicky
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