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hi guys not long ago i opened a discussion about a sickness that sounded like fibromyalgia .to resume i have burning sensations each time a walk the stairs go up a hill or try any simple muscle movement . witch forced me to stop sport due to high pain . you gave me amnyadvices and told me that the best is to see a doctor . and i did .he made me do blood tests and everything was perfect . then he gave me some antibiotics and vitamines and still nothing at all .i'm  really desperate .i don't even know what i have . i just self diagnosed myself with fibromyalgia . i have no idea if its accurate or not . i suffer for more then 8 years now. i'm out of solutions . any ideas guys of what i should do or try ?

thanks guys

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  • Posted

    Hi Ilyas001,

    Do you have back pain or sciatic? Have you had MRI there are test that neurologist can do like emg test. What

    Your describing sound like nerve pain the could be caused by back out sciatic or fibro



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    • Posted

      thanks for the reply

      hi men since the test is in french i will write the big titles i think that's enough tell me if you need more

      biochimie , umminologie , hematologie , inflamatorie bilant . the only problem in that the test is the ASLO (Dosage des Anti-StreptoLysines O ) being at 227.26UI/ml

      for the rest he told me all is norml .i told him i have a throat infection due to smoking and that's why the aslo is high . he gave me vitamines , a penicillin shot i believe and and some anti biotics to see if the aslo don't come down

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  • Posted

    I had similar problems 22 years ago this month, which was later diagnosed as Fibromyalgia. At that time they tested all fibro points and if you had a certain number of painful points then you were diagnosed with Fibro. It took me several months to accept that diagnosis and the reason I finally accepted it was because I read a book about the difference between Fibro and Chronic fatigue. Unfortunately I have long since forgotten the actual name of that book, so I cannot give it to you. I discovered that I did suffer from 99% of the Fibro problems described in the book. Accepting the diagnosis was good for me because I then looked at ways of dealing with the problems I had. There is and was no cure for the problem, so it was up to me to deal with it. Yes I have been in pain every day for 22 years (except for 3 and 1/2 days)(another story)  I found stretches which helped with muscle problems, heat bags, hot baths with Epsom salts, osteopath treatment and massage. All help me and after awhile it just became the new 'normal' for me.

    But for you, I think the same advice still applies....see another Doctor. Search for one who specializes in this condition, and find out for sure what is wrong with you.

    I have just learned a lesson myself.... that Doctors and Specialists do not always get things right as there are SOOOO many different things that can go wrong with the body. My knee was feeling very insecure and giving way beneath me, resulting in falls. I was getting around very slowly like a 98 year old (long before my time). I was mortified at the possibility of having to use a walking frame at a young 68 year old. Two Doctors and a specialist gave me differing ideas of what the problem was, but basically it was something else I would just have to accept and put up with. I thought 3 opinions meant I had to accept my new failing health. Wrong !  I went over to Australia to see family. Two brothers were going to see their Chiropractor that afternoon so I made an appointment too, just to get another opinion in case if was something genetic we all suffered from. She said she would wake that knee of mine up. She had some piece of old equipment which sounded like an old tommy gun. She shot it at my knee several times and as I left her office I knew that my knee was different. I had to go upstairs and my knee no longer felt insecure. 2 months later I have still not had any more problems with it. I am sooooo pleased I made that decision to go see that person, that day.

    Please go see some one else for another diagnosis.

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  • Posted

    Really feeling for you ilyas, it takes most of us many years of different issues to get need to see a Rhumatologist they are the dictors  that usually, well for most  of us diagnose soon as I saw mine I was diagnosed..,ive had Fibro and Sorgrens Syndrome now for over 30years only get flare ups now, I just had a knee replacement, and boy oh boy did it ever flare’s usually stems from a body trauma in the mind or body...mine crept up 10 years after a bad trauma to my mind..please try not to stress Fibro loves feeds on  blessed  ilyas and have a lovely weekend..I’m in Australia-Tasmania and it’s going to rain all day..grr..?😍😍😍😍

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