1. Community
  2. Bones, joints and muscles
  3. Polymyalgia Rheumatica and GCA

Still not sure whether to accept PMR diagnosis

Posted , 7 users are following.

Sars77
Sars77

Hi all. Not been on for a while, had do much on & takes me so long to do anything.

PMR diagnosed 6 months. All pain from waist down returned, including muscle twitching & tingling. Neck, shoulders etc all fine.

My inflammation is back to a very normal 12 ESR & 5 CRP.

I can't walk or stand for 30 mins without severe pain & needing the loo. I get out of bed fine, my pain starts when I'm on my feet.

I've been back to doctors several times asking for referral & further investigation. Doctors can't refer as PMR is dealt within surgery, here in the South East.

Given me HRT as hormone levels show I'm menopausal & the hot flushes have been coming in droves. I'm 48.

They say alot of other my symptoms & the fact I feel a complete wreck are both PMR & menopause.

If this is the case I will accept that & realise there's a long road!

My other option is to keep on at them like a hypochondriac!

I'm still very confused by it all. Happy to hear your stories & any feedback. Thank you so much.

0 likes, 21 replies

21 Replies

Prev
  • Michdonn
    Michdonn Sars77

    Posted

    Hi Sars77, you state inflammation levels were raised initially & the Pred did reduce so I responded and presented in a typical PMR way. But that is no longer the case? The Pred will keep the inflammation levels down. I know once I am up and moving my PMR pain is reduced not increased. Appears you have something else causing you a problem. Hope you find it soon. Good luck!

  • ricky23486
    ricky23486 Sars77

    Posted

    All the red lights are flashing here.... You may also have pmr and be menopausal but there may be something else going on as well... A neurologist needs to check you to rule out nerve impingements which can cause some of the symptoms you describe especially when standing up which are not usually reported by people with pmr or women in menopause.
    • Sars77
      Sars77 ricky23486

      Posted

      Thank you Ricky, I agree with you & I have been pushing for further investigation. My doctor says pins needles & numbness also PMR?! They don't want to refer but watch & wait. I feel I need to go in there & tell them what I need but don't know what to ask for. Thanks for your reply.

    • EileenH
      EileenH Sars77

      Posted

      A referral to rheumatology or a spinal specialist in orthopaedics probably. But no, ons and needles and numbness are NOT due to typical PMR. I hope they don't watch and wait with stroke and GCA patients...

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.