Still Suffering

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Last October my urogyno told me I had LS because of change in architecture. I had no white patches. After using clob  for 2 months she told me she wasn’t convinced that it is LS and to stop using ointment. She told me to see my original Gyno in same office to see if she can offer any other ideas because I still have the awful burning (no itching). She also referred me for a colposcopy this coming Monday 

I saw my Gyno today and she did say LS because skin is thin like parchment and my labia is flat. She gave me a milder cortisone cream and aquaphor

I’m very confused and also terrified because I’m sure I’ll have a biopsy to definitely confirm everything. My dr says LS is autoimmune disease. which I read about 

I’m 70 years old. I’ve posted here before but it’s been a while 

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5 Replies

  • Posted

    Hi Arles, try liberally rubbing home brand, cheap olive oil inside you vagina and around your labia lips and clit as well be very generous in the amount that you use then pat dry but leave it a little moist still. Do this EVERY time you go to the toilet or have a shower and the itch will completely dissaper within about three days. I'm 63 and had suffered with this for about 10 years now, I had very severe L/S and none of the steroid creams worked at all. My life was a continual misery until l discovered this now, l have NO symptoms at all now and the white patches are disappearing as well and l had it very servere, now l have absolutely no itching or burning NO swelling and NO redness or inflammation at all, my gyno was so impresses that he is now trailing this and using this method with quite a few of his other patients with exceptional results. I leave an egg cup in the bathroom on a shelf behind the toilet so l have on hand when l go.

    Hope this help Barb 😊😊

  • Posted

    Hi arlee, not everyone with LS has the white plaques of skin around the vagina.  You have been visually diagnosed TWICE for LS and the fact that the architecture of your vagina has changed confirms this diagnosis.  Therefore I would not have a biopsy to be honest as they will only tell you what you already know... and that is that you have LS.  Not only that it can often cause more problems in an area that is already sore...the correct name for this is the Koebner phenomenon.

    Keep a small spray bottle in the bathroom and after using the toilet spray your vagina with this and gently pat dry, this will stop any urine aggravating that.   Try to watch how much sugar is in your diet.

    • Posted

      Thanks!  I will keep a spray bottle handy just plain water? 

      The last thing I want is a biopsy. 

      Are you using a cortisone ointment ? 

      I can open my own pharmacy - I have so many ointments and hormonal creams. 

      The doctor gave me mometasone ointment at night and aquaphor in the morning   Someone told me that cortisone can cause yeast infections. That’s what I forgot to ask the dr about 

  • Posted

    Hi, You can put a pinch of salt or bicarbonate of soda in the water.  I use salt.  I only use the Cortisone cream (Clob) cream in emergencies, like when I have a flare up.  The rest of the time I will use cream like Desitin for sores and cuts.  It is a long time since I have flared as I am gluten and dairy free which I think helps me.  That said, I have always maintained that sugar is anathema for LS and so you have to watch what you eat.  Use the steriod cream when you are in a major flare and then look for alternatives that will work for YOU..we are all different, you could try hot2trots idea of olive oil, it works for her and it might work for you, its a matter of trying different things.
  • Posted

    Hi arlee - I have 3 different strengths & makes of steroid creams, along with hormone creams.  I just sent a message today to my gyn to cancel my up coming appt.  I've decided to go natural.  I'm 65 years old, and have had this for years, but only knowingly active for the past 14 months.  The prescription drugs always made it worse.  There are allot of treatments on here that have helped me allot.  Tomorrow I will finish taking 2 weeks of the borax treatment which I got on ebay.  I did not mix mine with water, but instead put them it in a capsule.  I have gotten a bit better, but more importantly to me, I haven't gotten worse.  Let me know if you try one of these treatments on here, and how it works.



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