1. Community
  2. Blood & Immune System
  3. Haemochromatosis

Still waiting results of genetic testing

Posted , 2 users are following.

marie13049
marie13049

It is it is nearly 6 week since I had my genetic test and I'm still waiting for the result haematologist said if the result is negative GP is to ignore the iron overload and there is no need to monitor my iron levels in the future they do not seem to be interested to find the cause of the iron levels please can you advice shall I just leave it if the results are negative thanks

1 like, 2 replies

2 Replies

  • marie13049
    marie13049

    Posted

    I hope this make sense as I used voice and did not know to check before posting
  • sheryl37154
    sheryl37154 marie13049

    Posted

    Hi Marie, other causes of high ferritin are fatty liver, alcohol, inflammation, infection, malignancy.  Fatty liver is very common.  You could ask for a CT scan to check on that situation.

    Apart from alcohol, fatty liver is caused by the consumption of sugars and starches (not fats).  I have had 2 ladies in my haemochromatosis group who were heterozygous, therefore should not be loading iron because of their genes.  They reduced their consumption of sugars and starches and their ferritin levels dropped dramatically.

     

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.