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Stinging/ burning

Posted , 3 users are following.

moira14061
moira14061

I was eventually diagnosed in 2019 with LS & VA after many visits to my GP for suspected reoccurring UTI.!!! In the end, I paid pvt to see a Gynae who prescribed the usual Clobetasol Ointment & Estriol Estrogen cream, which i apply both - twice weekly as he instructed. Does anyone else still suffer intermittently with the burning/ stinging, bladder probs with their LS/ VA , despite using these meds and their correct dosing measures. ?

Don't get me wrong, am a lot better than I used to be before the meds, but still feel compromised and deflated by these horrible symptoms which can, and do, put tremendous restrictions on everyday life, physically and mentally.! It's so depressing and debilitating- not to mention the anguish and worry! TIA

x

0 likes, 3 replies

3 Replies

  • eggbiscuit
    eggbiscuit moira14061

    Posted

    Hello Moira,

    Yes, and Yes. Yes, I still suffer with some burning and soreness even on these ointments of various kinds. Living with this has been the worst experience of my life. Do you feel the same? Can't sit comfortably in a chair, lost friends, can't enjoy hobbies. So, yes, I totally get it and I'm over it, over these doctors telling you "nothing we can do," "go to physiotherapy," NOT. Tell me about yourself. PM me if you like.

    Eggbiscuit

    • moira14061
      moira14061 eggbiscuit

      Posted

      Hi eggbiscuit , many thanks for your reply.

      well, where do I start I ask myself, I totally agree with your comments, it's a horrible condition, so debilitating, not to even mention the almost daily discomfort we are all suffering.

      I was diagnosed with VA & LS back in 2019 , although I now know- i had been suffering with both conditions for some time because several clinicians had neither the knowledge training or expertise to recognise the signs & symptoms 😢 so I was regularly packed off with the usual UTI antibiotics .

      Well- i finally reached the point of desperation and got a referral to a Gynaecologist, hence the diagnosis. Unfortunately, because of their repeated negligence and delay, my lady bits had suffered with the loss ofthe vulva architecture etc !

      I seemed to be doing a lot better with the estriol cream and steroid ointment- until I wasn't !

      Some days I almost feel back to square one with all the painful stinging /burning and feel at a crossroads with it all as I'm pretty sure all us ladies/ men do !

      I'm considering going to see a vulva specialist. A cure isn't an option, we are told it can only be managed with steroids and topical hrt creams etc , how daunting is that theory, but I'm hopeful their is someone out there in a clinical capacity, that maybe able to help me in some way.

      How are you managing things? We are all in the same 🚢 , but being able to share our experiences and tips in managing symptoms etc, is supporting and uplifting for us all I think 🙏. plz God, someone can eventually find a cure for us all, sooner rather than later ! Apologies for the long post !

      kind regards. x

  • patricia22367
    patricia22367 moira14061

    Posted

    yes, I had that, I actually started using less medication, only once a week and the burning went away

    plus I use vitamin e oil from a vitamin capsule applied directly and that helps too

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