Stomach issues and headache feeling I’ll for over 4 years with no diagnosis. So frustrated:(

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After I had  my daughter in 2012 about 3 months after I started to feel ill on and off with stomach upset feels like stomach flu but I never throw up, major fatigue, gerd, and a feeling of lightheadness where I can’t focus. These episodes are sometimes sever where I have to lie down for hours and feel ill for days sometimes weeks other times it passes after 4/5 hours. I feel the episodes coming on with a a vise like headache or sometimes the stomach starts first where it feels sour like I could have diarrhea (sometimes I do) I get cramping and GErd and now have developed terrible acid reflux. I was prescribed Dexilent which only helped for a few weeks now I’m back at square one. This illness has severely effected my life I have missed out on so many things when these episodes hit and the chronic illness feeling has really paid a mental role on me. Can anyone relate??? I’m feeling lost.

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  • Posted

    Ask your GP to refer you to the General Surgery department at your local hospital, your doctor will know who.

    I have a range of symptoms including IBS, Gerd, hiatus hernia, i get doses of diaihorrea, very bad wind, stomach cramps and it all makes me feel quite slow. Recently i have been experiencing 'gastric attacks' where my heartburn is so bad it doesnt wake me until its too late and i wake up choking and unable to get a breath (like your worst ever choke after swallowing the wrong way), last time i had to be given Morphine. It had also caused some trauma in my throat from the burning/ acid; i was coughing all different colours for a few days after it.

    Ask to be referred.

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    • Posted

      I’m sorry to hear that about your symptoms.. I feel sometimes the worst part of stomach related issues is that they are not visible so to everyone around you, you seem ok unless you are experiencing an attack. I take Dexilant before if no to bed I take a Zantac to get me through. I just started to experience the dry cough and pain at night that wakes me up. I feel that I need to see a specialist too, is that what you are referrring to?
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    • Posted

      My doctor gave me a prescription for Peptac last year and i prefer it now; it can be bought over the counter too. It certainly helps me even though i keep away from irritants in my diet.
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  • Posted

    Yes, thats it! I couldnt think of the correct name earlier! lol

    With symptoms like you describe it would be better going to a specialist, your GP surgery is only primary care and theres a limit to what they can do but being referred to a specialist will at the very least put your mind at rest. Keep asking because sometimes thats what you have to do.

    The doctor i was under at the hospital has now left and so it seemed that they 'dropped the ball' for a while, i had PH and Manometry testing done last Oct and was told that with the results like mine i would most likely need surgery, and then it seemed that they had lost the results or my notes because i heard nothing. My wife and i kept chasing it and in May a doctor there apologised for all the strife and told me i DO need an operation and it WILL be in the next few weeks. Sometimes you just have to keep on at them but i appreciate they are under alot of pressure these days. The government really needs to help the NHS.

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    • Posted

      Yes I know the follow up is essential this is the third Gastroenterologist that Inhave seen in the last 4 years so I’m still searching for my diagnosis and tired of being thrown a bunch of medications. 

      Best of luck with your surgery I hope it’s your cure!

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  • Posted

    You can research your symptoms too, online; i do it when i learn of the procedure name, symptoms etc and i have had some good enlightenment doing that!

    I just like to read up on what a doctor says is going to happen for example; or if i've been told i have a certain condition; so i put the operation/condition name in the search and got some great insight.

     

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