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Stomas

Posted , 5 users are following.

stephaney28634
stephaney28634

Hi, as you know I have had a ilestomy for  7 years. Has anyone else got used their pouch?

0 likes, 6 replies

6 Replies

  • thepadre
    thepadre stephaney28634

    Posted

    Hi Stephaney,

    I'll be interested to see what answers you get. I had my ileostomy just over three weeks ago and have been wondering how long it will be before I'm fully 'at home' with it!

    • stephaney28634
      stephaney28634 thepadre

      Posted

      Hi the padre, it took me months to get to get used to my Ilestomy. The pouches have never gotten used too.hope this helps you.
  • Guest
    Guest stephaney28634

    Posted

    My daughter is 21 years old she got her first colostomy at 3 weeks old she got her permamanet colostomy and fistula at 4 years old (due to been born with a server case of Hirschsprungs disease)  Many many surgeries and most 6 years of her life in ICU. let me try to get tom my question to keep this post from been to long. My daughter has basically isolated herself due to her condiotins with weight/humped over back and host of health issues.  Very long story but she now will NOT go to a doctor no matter what! She has been having watery dirreah from her colostomy for MONTHS straigh and bleeding from stoma and also bleeding from fistual which drains infection like Ecoli should she get it. But we cannot stop the water dirreah or the bleeding from stoma and fistuala I canNOT get her to go to doctor and I buy everything I can OTC to help but this problem will not go away the fistuala drains blood blood clots and such . Stoma has blood mixed in  bowls and plus bleeds. She has lost tons of weight from been so sick Im her mother and at my wits end I'm so scared she will start to hemmorrage and not be ale to get her to doctor in time.  I called the hosiptal and they said if she is in her right mind which she is then theres nothing I can do. Please can someone tellm me what this can be what can I do to help her. The OTC stuff is not working!  This been going on for months! She is already an anemic I cant even get her to take a daily vitamin I bought her probotics.What can cause this bleeding from colostomy stoma and fistual stoma I'm really scare for her! What more can I do? Her father passed away Jan 16th 2015 from ALS and she even before that just 95% of the time stays in her room on pc/xbox one and nline chats with cyber friends. She will not leave house to go anwhere rearely! But the main issue now is what is causing the non stop water dirreah and bleeding from stoma and fistula for months. Please someone reply as soon as possible. Thanks, a very worried mom

     

    • stephaney28634
      stephaney28634 Guest

      Posted

      Hi, that is very serious. I suggest you take to a & e. what to me before I got emerancey operation, was very unpleasant.

    • Guest
      Guest stephaney28634

      Posted

      what was wrong that they had to operate can you give a little more detail?
    • stephaney28634
      stephaney28634 Guest

      Posted

      I have crohns and I nearly died. A big ulcer burst under a a blood vessel in my big bowel. Sorry, I still get upset talking about it.
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