Stopping Olanzapine

Posted , 6 users are following.

I am desperate I have been on Olanzapine for about 10 years I have been perscribed as much as 50mg per day 10 in the morning and 40 at night I have been slowly cutting back and have stopped entirely for a week now I have not slept in 4 days and I am at a loss what to do.... I have gained almost 80 pounds since I was put on this drug and am so unhappy with what I have become. Is there anyone who has anything like this ? Will I ever sleep again ? Please help me....

 

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  • Posted

    Hi Faith,

    My name is Colin and I too have been on Olanzapine for 10 years. I have taken myself down from 10mg a day to 2.5mg a day now. I also balooned from 75kg to 105kg at one stage. I decided that I did not want to be that way and i did not want to be on this drug anymore. To get my weight down I started to exercise regularly. This had two benefits: 1 - I dropped the weight and 2 - I could sleep at night while going on a lower dose. The exercise wore me out so I was physically exhausted, hence being able to sleep. Since starting that journey I have become a personal trainer. This too has helped me. I know what it is like to be awake for days on end so I hear you. Have you been cutting back on the drug, or gone cold turkey? i cant emphasis the exercise component enough! this combined with good food will certainly help. It wont 100% solve any issue but it is a step in the right direction. You need to activate your body in order to deactivate your mind, which if I'm right is racing at 100miles per hour....

    What is your support network like? Do you have people who you can call on to help, to talk to? trusted people.

    If you want you can PM me and I can help get you up and running with an exercise program that you can incorporate into your daily life?

    there is a way through this.

    Ill send my email through the messaging system.

    Regards,

    Colin

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    • Posted

      Thank You so much for the reply, I am doing alot better today I slept for 2 hours this morning and I feel like I will live... excercise I have been walking to get rid of some anxiety but I feel hopeless as far as a real workout I feel like I am so big it's just feels like it's hopeless . I need to do sit up's real bad but honestly I can't do anymore than 5 I know that sounds crazy but I am being honest. I feel like until I can loose some weight walking is about all I can do. I have been cutting back on the Olanzapine for a couple of years now and stopped entirely last week. You can't imagine how much it means to me that you replied Thank You so much... I have a small support system of people who just don't understand so I am so greatful You replied Thank You and God Bless you!

      Faith

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    • Posted

      Hi faith, It's good to hear that u had two hours sleep.

      Colin, is right exercise will definitely help, any exercise that will get your heart rate up, even if it's just fast walking, go up some hills if u can.

      Eating good food will help too.

      There is a herb called zizhypus that u can buy from the health food shop that will help u get normal sleeping patterns back. I took it for about a week and now I sleep really well.

      U can do it! Meditation will help with the anxiety too, I do _____ which I find is really helpful and I am also on a gentler drug, sodium valproate which manages my bipolar symptoms really well.

      Good exercise, eating good food, wholegrains like wholemeal pasta, bread and a good amount of fresh fruit and vegies will benefit both your mind and body.

      All the best, keep going u are doing really well.

      Patient Moderator Note: I have removed an URL (a link) from this reply as it was unsuitable for inclusion within these forums. If any user is interested in this removed information they should contact the author via the Private Messaging system requesting such. Thank you for your cooperation.

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    • Posted

      Hi sack I just read your inspiring blog . My son is on olanzapine 10 mg at present in hospital he voluntary admitted himself friday, after relapsing from his illness schizafective disorder. He stopped clopixil 350 mg every 2 weeks 1 year ago has been very well up untill last weekend. He also was very fit slim gym freak. Footy too. But the drugs made him like a zombie. Now he is craving sugar and smoking again cos of meds. Is there any hope for this dreaded illness I wonder!!!
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    • Posted

      Hi Faith, I just saw this post you left months ago. Im sorry I did not reply as I did not see it. How are you doing? is life going well for you? I truly hope it is.

      Are you still walking regularly? Let me know if you want any help, I'm happy to provide you with something that you can sink your teeth into. I have an online training website which you could use. PM me if you like.

      Colin

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    • Posted

      Hi Josey, Sorry to hear your son has re admitted himself. But at least he had the foresight to do that, better than getting taken away by some unknowns. In my experience it is a daily thing tht you just have to keep sight of and remind yourself that at anytime the wheels could fall off. You have to be prepared for anything and even then I have found its always a curve ball that can affect you the most. I believe once you have experienced what your son has life is never really the same again so you have to make adjustments to allow for that. trying to live your life as you did simply doesnt work anymore. At least that is how it is for me. That is not a bad thing though as change can always be good. You just have to make the right choices and do the right things and say to yourself "I will continue to get better". My life is very different from before experiencing psychosis but in many ways much better. i dont look at it as an illness, rather a experience that forced me to change and live a better healtheir life in many ways. Change is hard and you can only change a little at a time, but you can change. As a personal trainer I know the benefit of taking a before and after snapshot. it shows where you were and where you are. Maybe look at your sons, or get him to look at how far he has come and the positive changes he has made so far might help. There are always setbacks with anything in life, everyone experiences them, noone gets it right the first time round. This recent episode is just a small setback thats all. when he gets back into things again the best thing to do is to keep on moving forward. 
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    • Posted

      Hi Sack thankyou for the reply. Its so bloody hard my daughter went off to Uni last sep and Michael was doing so well off the depo and back at tge gym footy work etc.then bang relapse now back in hospital on meds that im not sure are working he is fine during the day but not good as the night sets in. He nearly left last night says he cant stand it in their anymore. But sadly I feel he needs to stay to be monitored properly by the professionals and to see he is on the right meds. He isn't on a section so he can leave at ang time. He doesnt want to come back to his flat next door to me either cos when he was unwell he got into some arguments with the other residents who are alcoholics not a good combination to be between. But I told him he cant keep running away he has to try and live around al types of people. He is a well liked lad in our town, the local club where he plays pool and sees his mates has given him confidence again . But he changes his mibd all the time what he wants to do with his life and where he wants to live. Its hard for me too cos my plans to work abroad have now had to be put on hold only he only has me his father wouldnt give him the support I do he has another family now. I just cant bear to see him have no motivation and just sleep all day again its no life for someone who was so active.x
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  • Posted

    i have only just started 2 get a decent night's sleep after 18 months.  after 4-6 months i was sleeping 2 - 3 hours a nite. it will b a struggle.  i was on 15 mg for 17 years.  there is no remedy 4 the insomnia.  good luck faith.
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