1. Community
  2. Brain and nerves
  3. Chronic Fatigue Syndrome

Strange Problem - I would like some input and hugs

Posted , 11 users are following.

Ravenwood
Ravenwood

Okay, I have a strange problem.  Approximately 4 weeks ago, I started working from home with fewer hours per day.  Once I started doing this, I let down all my barriers to pain, etc, and allowed myself to truly relax.  For the first time in years, I feel better.  My blood pressure is down, even.  This part is wonderful.  But here is the weird part.  Now that I am relaxed, I feel pretty good when I am resting; however, if I do anything, my symptoms seem worse.  I get sick sooner, get nausea faster, dizzy sooner, all the symptoms that we all know and love.  I am hoping that now that I have relaxed and stopped pushing myself so hard . . . well, no, I don't understand.  Why would my symptoms get worse if now I am relaxed and resting and doing all the other stuff I'm supposed to be doing.  I am a bit frightened that I am getting worse.  But how would taking care of myself, make my symptoms worse?  Does anybody have any ideas?  Suggestions?  Has this happened to anyone else?  I would appreciate any help in this.  Thanks!

1 like, 19 replies

19 Replies

Prev
  • cheryl5535
    cheryl5535 Ravenwood

    Posted

    I experienced this when I went on holiday last year - did nothing just laid around a pool for two weeks reading books - then when I had to climb a couple of flights of stairs to restaurant three times a day I was exhausted.  I think the less you do the smaller things seem bigger somehow.  Also I am seeing a CFS specialist at the moment who told me when you try to keep going your body dumps adrenalin in your body to cope.  I had a relapse last week and am still suffering but when I stopped for a few days to try to recoup I got progressively worse and after 5 days couldnt walk.  I wondered if the adrenalin was almost like a drug my body had got used to having and I was getting a bit of withdrawal since I wasnt pushing myself anymore.  Obviously none of this is proven but seems to make sense.  Be interested to know what anyone thinks.
    • Ravenwood
      Ravenwood cheryl5535

      Posted

      Adrenaline withdrawal.  I didn't think of that.  That actually might make sense.  A part of my brain keeps pushing me to go, go, go.  I think it wants the stress and therefore the adrenaline.  Hmm.  I find this interesting and will have to be mindful of how this may play out in my daily life.  Thanks!
  • GeorgiaS
    GeorgiaS Ravenwood

    Posted

    Perhaps because because you're not living on as much adrenaline, which is stressful to do too much and damaging. So I'd say stick with the more relaxed approach because I think you'll adjust to it.

    Although I'm great at giving advice but not so good at putting it into practice for myself! cheesygrin

  • Ravenwood
    Ravenwood

    Posted

    Thanks, all.  Your advice was helpful, and I really appreciate the support.  Sometimes, this sickness makes me so scared.  Even after being sick for 11 years, I still find things that confuse and scare me.  You all are great people for taking time out of your lives to help.  Hugs.
Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.