Strange sleep behaviour, really worried!!

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I apologise in advance for the long post but I have a lot to explain. I've become progressively more worried about my boyfriend. At first I just thought he was exhausting himself at work and his behaviours were a result of this but as time has gone on the issues have gotten worse or more frequent. We don't live together so most of my experiences have been over the phone or while on video chat and it's hard for me to help him like this and I get really upset whenever something happens.

It started out with just him being so tired that he would say things that made no sense and struggling to do basic tasks. I'd keep trying to suggest he just lie down and worry about it in the morning but he would keep saying he needs to get some water then proceed to struggle doing so for the next 20 minutes. This happens everytime, I hear/see him attempting to do something, I will ask what he is doing and he will say I'm just stretching or I'm just looking for my charger and sometimes he is literally just standing there not doing the thing he says and he doesn't even realise it? He hears me when I'm talking to him and will respond most of the time (even though he doesn't always make sense) but it's really almost as if he is fully asleep and doing everything out of muscle memory.

He also struggles to stay awake during the day. Sometimes he will be sat there watching TV, the next he will be asleep and I will get no response when I try to talk to him. The time he stays asleep for when this happens varies, sometimes he will stay asleep a couple hours, sometimes just minutes and he will wake up and start talking to me as if nothing happened and he won't always realise he fell asleep afterwards.

This issue also gets worse at night, sometimes when he gets home from his late work shifts we will be on the phone talking just as normal and he will fall asleep in a instant in strange places. The last time he was sat on the toilet and fell asleep while sat on it! I heard a thud as he dropped the phone and I could no longer get a response from him. The even stranger part was he later woke up in his bed with no idea how he got there, totally confused and found his phone still on the bathroom floor where he fell asleep. There have been other occasions where we weren't on the phone where he told me he woke up and found himself on the floor!

To be clear he works regular length evening shifts but his sleep schedule is very normal and healthy. He will be asleep before midnight and get at least 8 hours sleep every night so there doesn't seem to be any reason why he should be so exhausted that this is happening. Also to note, the times where he is up moving around but in a very confused state can happen suddenly when we were having a perfectly normal conversation just moments before or when he wakes up in the middle of sleep. He doesn't recall a lot of the odd behaviour that I experience him going through by time he wakes up but I know it's starting to scare him too. We'd really appreciate any insight anyone might have on this situation.

Thank you!

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  • Posted

    Hello! Firstly, Narcolepsy seems very similar to what you are describing, but do not worry. You need him to get a sleep study. Also, have you noticed any neurological symptoms such as clumsiness, strange movements when walking, darting eyes, muscle stiffness? Regardless of if you have, get a sleep study done in a proper facility.

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