Stress affects M.E

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The slightest bit of stress really affects me. :roll:

My poor daughter has had 3 partial seizures today. I picked her up from her boyfriends at 4.30pm and she had 2 there and her third at home.

It's so frightening to watch. I sat her down on the chair and her eyes were looking up and down, her jaw was going and she goes a horrible :blue: dusky colour. It lasted about 3 minutes.

My chest was full of that rash due to anxiety and my thighs started to ache.

This is the first since she was in hospital on 4th Jan and she is just about on the full dose of her tablets.

She's been asleep since and i keep going into check her. I am so frightened she takes another grand mal seizure.

Guess who won't be sleeping tonight, even if i can. I'm so scared.

I'm supposed to be at work tomorrow :roll:

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14 Replies

  • Posted

    Oh Teedie, I'm [b:b82d59615d]so[/b:b82d59615d] sorry :cuddle:

    That must have been really scary and I'm not surprised you're reacting to it...... sad

    Have you had any advice as to what you should do if this happens ?

    Maybe you could ring the duty doctor or the hospital ? :?

    Thinking of you and sending all good wishes to you and your daughter from down here to up there :hug:

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  • Posted

    Thanks Daisy - because she has been diagnosed now with epilepsy and is on medication, i think we have to just monitor it at home :roll:

    Although, if she was to have another major seizure lasting 5 minutes (talking from experience as a :nurse: ) I would definitely call an ambulance.

    She has an appointment on 17th March with the neurologist and has been referred for an MRI scan.

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  • Posted

    It's good you've got appointments in place; now you need to look after yourself !

    I expect you need to keep a diary so you can give the neurologist all the info he needs to know......(bet you've thought of that !)

    Isn't it odd that stress and anxiety makes ME and Fibro so much worse - must be the adrenaline thing ......so........nice deep breaths and see if there's something mindless and soothing (unlikely) on the TV for you to watch while you're keeping an eye on your daughter smile

    Take care

    :zen:

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  • Posted

    Oh Teedie how awful for both you and her sad

    I do so hope that she has a good night :? It is such a worry when things like that happen cos your mind goes into overdrive and you jump at every little noise sad

    No wonder you're stressed about it Teedie - nurse or not, its different when its one of your own sad

    Best wishes for a peaceful night for you both :wink:

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  • Posted

    Oh Teedie, I am so so sorry ..... what a worry sad

    Sometimes, it's almost worse having medical knowledge at a time like this. Is there any way you can get the appointment brought forward?

    Of course you feel stressed, who wouldn't. But we are all thinking of you and do hope that your daughter sleeps peacefully and you are able to have some sleep too.

    Take care :cuddle: :hug: :cuddle:

    Katie xx

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  • Posted

    Thanks Ladies,

    Katie - She just got that appointment in, it was originally for June. :roll: Yes, medical knowledge can be dangerous :roll:

    Daisy - i have already charted it on the calendar and i will go with her to the neurologist.

    Julia - thanks and i hope she has a peaceful night too :roll:

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  • Posted

    oh im so sorry you're daughter is having a bad time with her epilepsy sad that must be so difficult for you all.

    sending lots of sympathy, and really hope she improves over the next few days :cheerup:

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  • Posted

    Thanks Trees, it never rains but it pours :roll:

    She has her birthday on Thursday (same day as me) On the 9th she is getting a contraceptive coil fitted :puff: (as recommended because of her meds, they interfere with the pill) and she has her interview at Uni for nursing :nurse: on 10th so i hope she is ok. :?

    I really feel for her at her age, she is only 19 on 5th.

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  • Posted

    Teedie, your daughter is just so lucky to have such a lovely, sensible supportive mother smile

    We never stop worrying about our children, whatever age they are .... and it can be very, very wearing even if one is 100% fit .... but just hang on in there ... you are doing a grand job :ok:

    Think we are going to have to organise party time on Thursday then folks :D .... a double celebration :cheers: :bubbly: :magic:

    Take care Teeds .... we are all here for you :cuddle:

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  • Posted

    Hi Teedie my heart goes out to you and your daughter. I think it is much harder when it's one of your own that is ill. Will be thinking of you both, take care. :hug:
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  • Posted

    I missed this last night but I feel for you Teedie, not that I know how you are feeling, I couldn't.

    But mothers never stop being concerned for their kids, even when they are grown.

    Please take a day off work if you need to, your daughter needs your support and if you become debilitated you will not be able to give it.

    How are you both today?

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  • Posted

    Thanks for all your kindness and support everyone :smooch:

    My daughter had a good night but obviously i didn't sleep much so a bit shattered today. :roll:

    I am feeling alot better after my restful weekend, hope it continues :?

    However, i went to work but left at lunchtime. I was really afraid to leave her today but she seems fine, a little down i think.

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  • Posted

    Phew, well that's a relief Teedie smile

    Let's hope that your daughter continues to be okay ...... I do wish her good luck for her interview, by the way :ok:

    Hope you have a much better night Teedie and manage to get some much-needed sleep :zzz:

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