Stricture pain and humira

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I've had crohns for 16 years and have a stricture. Recently started Humira (end Feb) but since starting it I've been getting episodes of bloating and bad abdominal pains, lots of stomach grumbling noises and bowel movements suddenly stop which is not normal. Has anyone experience of humira and has had similar symptoms or could it be the stricture? I know humira can take up to 3 months to start working but my symptoms seem worse than before I started!

Any advice anyone?

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  • Posted

    I was on Humira for 12 months but I stopped taking it for about a year now as it was giving me bad stomach pains, bad moods,

    The only time I felt that the Humira was at its best, was when they gave you 4 injection in hospital at once. Then 2 injections in hospital

    Was ok for a while, then when I went down to 1 injection every 2 weeks, I was getting ill again so I was having

    1 injection every week. This made my sickness worse then ever before!

    I am now on Azathioprine, i feel very lethargic and fatigue but that nothing to what I felt like on Humira,

    It does seem to work for some, but not for all!

    How many injections and how often do you have them?

    Thanks Twiglet!

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    • Posted

      Hi,

      Thanks for your reply. I'm on 1 injection every 2 weeks. I seem to have had more stomach pain since on this than before. I've tried azathioprine before but it gave me septacaemia. Did you have a blood test whilst on humira to see if it was working?

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  • Posted

    Hi Tracey I think it could be the stricture, but I can't remember having

    So much bloating and abdominal pain until I started on Humira.

    I was having full blood test every month, but the test results always came back fine.

    When I was taking Humira, i had sore eyes, mouth, gums, pins and needles in hand and feet,

    Fever, i felt like a zombie and then I was hyper the next, the pain was like i had been drinking battery acid!

    Sorry you were so ill on azathioprine, i was taking 100MG, once a day in 2000, but was stopped after 2 weeks, they said it was affecting my bone morrow,

    Now I'm on 50mg once a day. I'm having problems with sores on my face and on top my head.

    I've had Crohn’s Disease, for 21 years.

    Thanks Twiglet,

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  • Posted

    Hi tracy i wish with with my intire being a had good news i can only speak of my own experiences and those of other crohn's sufferers that i know.

    I have had the disease foe 54 years from the day i was born diagnosed at the age of 34 I believe we are all born with the defective genes and medication, virus whatever being the trigger bare with me i have so many secondary illnesses from medications as do most sufferers of all illness disease (desperatly trying not to offened anyone) There are no medications or diet that will stop the progression of strictures (had them removed and still have several) not the doctors fault their hands are tied still listen to your doctor but ask every question and try to combine as much infomation from forums like this and natural therapies food diery

    This may help a sticture which is scar tissue from inflamation is fibroses we need enzymes produced by our bodies to break down fibrosis non of this info is new it is just time consuming filtering the good info from the bad ask as many doctors and natural therapist as you can it takes along time but every one is completely unique with there illness best advise i have for all of us we have to eliminate all stress from our lives and do not ingest any sugar and no preservatives and look after each other

    sorry for raving on still recovering from my last op

    We all need to help and think of those infinitly worse than ourselfs i discovered a neighbour who has little to no bowel left very ill all the time but still finds and gives time to helping others I will try to help where i can and as unbiased as humanly possible please tell me if i have said anything wrong

    Thinking of everyone

    Les

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