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So after Azathiaprine causing Liver damage, steroids causing Cushing’s syndrome. Humira not working I finally found something that looked like it was going to work. Infliximab! After just one treatment I started to feel slightly better (aside from other issues I have going on non crohns related) but. And here’s the big BUT. Turns out I’m allergic to it!!! 😫😫😫
First infusion I felt quite tight chested afterwards so they gave me IV antihistamines then 12 days later I woke up with swollen tongue & struggling to swallow. Figured that was to do with my other complications I’ve got going on (suspected oral cancer) so spoke to 111 who told me to take antihistamines & see how I go. Was fine following day. Went for my 2nd infusion today & Dr decided it was too risky to do it so have cancelled the treatment! Now on nothing for my CD & awaiting to see what they come up with treatment wise later on in the wk 😞😞 I seriously can’t catch a break with this bloody disease 😞😞 Rant over!
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