struggling..Any advice..
Posted , 6 users are following.
Having a fibro flare up and struggling at minute..I need to come to terms with my diagnosis I think...I'm so tired..and fatigued all the time, the pain is constant and now my IBS has started again I'm sure everyone on this site knows what im talking about but now getting really worried If I have commitments in the week ie: going to hairdresser or a taking my child to school or going out for the day I feel panicky and overwhelmed..I have never felt like this before and I'm really worried. Has anyone been like this? Is this part of the condition? I feel as though I'm losing myself I have always been outgoing but everything is so tiring. Can anyone help.
2 likes, 23 replies
louise91796 dana32898
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dana32898 louise91796
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tiswas24537 dana32898
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the panic comes from being afraid your be ill in public and make a fool of your self ,i am always afraid of fainting when i get dizzy spells, i find it is worse if you have a lot of commitments in one week, it makes it more over whelming.
i space mine out to know more than two aweek . is there anyone eles who could take your children to schoool , or our there any parents that you could share taking the kids to school,
i am much better mently and physicaly since re introducing magneisum oil as a rub helps ease the pain and absorbs thru the skin to help rebuild magneisum levals
mag plays an important role in the body helps with fatigue pain and depression ,and applied to the skin it dosent effect the stomach causing upset
. i use supplements only and i seem to be doing ok iv had it 10yrs ,
do relaxtion cd twice a day helps to calm everything down even your ibs
i started doing it when i had a bad bout of ibs and it did work but had to do it twice a day every day. try and calm down ,even now if someone strarts an argument or i get bad news my stomach will kick of straight away , no other cause except stress .
so i no how powerful stress is . so try and do that relaxation it really does help .
you buy cds for percivic conditions like i b s . thats what i did.
dana32898 tiswas24537
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can you tell me Tina are you on any medication or just supplements? and I will definitely try the relaxation xx.
tiswas24537 dana32898
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i had a friend back in banbury where i used to live who had a autiscic son i spent one afternoon with her and her boy , i was totaly exhusted .
aspergers is harder enough , and other people dont make it any easier.with stupid comments , do you have a home start group in your area ,they are an charity organisation that help familys who need support . you could ask at social services , tell them you are asking for help due to health problems . asking is better than suffering alone.
no i just use supplements due to my aspergers which makes me sensistive to alot of things i do have to be careful what i take .
try and keep ocupied as much as poss do siomething you like doing every day , music awalk etc and dont forget the cd it reall does help .
if you want more info on supplements your have to private message me i dont know how you do it , i just no you can because another person has started to do it. the modarater for this sight takes out info that they class as advertising , but you can tell people thru private message.
blessings tian is my spiritul name , i prefer it to my birth name of tina . but il answer to anything . even A YOU LOL .
some of us have started to put where we live at the end of reply just in case any of us are near by and could meet up.
i am in filey north yorkshire ,near scarborough.
dana32898 tiswas24537
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I am in tamworth in Staffordshire.
tiswas24537 dana32898
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and so many other isuses , my son is worse than me , i have learnt to be flexable his just 24 and does not empthsis with others .
i prefer to mix in small groups as i find large gatherings very overwhelming as does my son
. spirit gave me my name i always put my name at the bottem of my emails . then suddenly i started writting my name tian ,my tarot reader told me to adopt it as it was from spirit. so now i use it alot.
is dysplasia a corodination problem .
think iv got it right .
how many children do you have , i have 3, 2 girls and a boy.
my eldest has rhemotoide athritus .
any how let me know if you want my email.
tian x
dana32898 tiswas24537
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dana x
tiswas24537 dana32898
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the problems came when he left school just like i knew they would, they wanted him to go to scarborough colleage , i said theres no way he would manage but as per i wasnt listened to .
it started of pretty much ok with a course ran for kids with social problems , except for the taxi forgetting to pick him up and one time not turning up to bring him home, i was in a right state and so was he. anything could have happened scarborough has a real big drug problem,
luckly he did have enough sense to stay were he was i waited till 5,30 because he should have been hom e at 5 and i didnt want to be seen as panicking,
then i rang the taxi firm they had no record of needing to pick him up. luckly my husband was of and he drove to the colleage to pick him up .
that meant travis was freaked so wouldnt go the rest of the week. then he went back ,and they closed the course and put him on a full sized course and it all fail apart , his been at home ever since.thats 8 very long years.
i tried to get him in special needs colleage where he could live away from home in surpervised situation and learn how to look after him self .
but although he made several trips there and liked it ,he became ill and needed medical procedure to stretch his gullet which took 18months and me pushing all the way to get him seen
,no body goes from 16 stone to 8stone 10 with there being nothing wrong, but i had a terriable fight, and it was an awful time for travis and me i hated to see him suffer.not being able to eat anything but creamed cheese and yogaurts
and i would have totaly freaked if i had to have it done, by the time he had . and recovered ,the funding had been cut ,and he wasnt given a place, i was so bloody mad , he would have grown up a lot and would have been able to work and lead an independant life .now it looks like he will just be a burden on the state. how is that best for him or the state.
by the way travis is big built and 6ft 8in . now thats a novel .
if i was you i would be searching now for special needs collage for your son , because other wise as soon as he leaves school they will forget about him. my email is . the i in tina is a number 1. tian is my sprirtual name dont no if i told you . if you contact me thru my emails il give you my phone number a chat is some times better. esp if you think your the only one out there struggling . blessings tian x
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tiswas24537 dana32898
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dana32898 tiswas24537
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JulieBadger dana32898
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The best thing for you at the moment is to remember you are in a flare up. Yes flare-ups last different lengths of times but they do calm down. It will get better between the flare-ups. Lessen the commitments if you can whilst you're in this phase. The relaxing CDs are a good idea to calm you emotionally / mentally and physically. Take one day at a time. If I think of the whole week and the number of commitments I freak out, thinking can I handle them? Sometimes I have to just think of the morning and then we get to lunchtime and I then think of the afternoon. Definately not how I used to be. I was an organiser, I liked to plan and be spontanous. Now that over whelms me and I have to just think about each day only. Mainly because of how exhausting it seems. It will get better x
dana32898 JulieBadger
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Ech1ck dana32898
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Ech1ck dana32898
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dana32898 Ech1ck
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Ech1ck dana32898
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I think we are very similar as I too had a manual job and I would really work hard at getting well to only then work one day to have 3-7 days off in agony. My company chose not to support me and forced me to accept redundancy which considering my role as a Health and Fitness Manager was primarily supporting the local community and council with proactive and preventative health care really really got to me. You are the only other person I have spoken to that is also doing hydrotherapy. It would be great to keep in touch and see how you and your son are doing in the future. Again all the best.
E
JulieBadger Ech1ck
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I have a hot tub at home which you can swim in and the warm water really does help with the bubbles. I really should make more time to go in it. I found it a problem that you could only sit or swim but I've just found a float which I'm hoping to lay on.
So for me the Hydrotherapy didn't work but relaxing in the warm water does.
Hope the Hydrotherapy works for you both. I would certainly recommend a hot tub session if you can get access to one.
Ech1ck JulieBadger
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Yes I was like that with the hydro too so they cut it down to 5 -10 min max sessions otherwise I was too tired to get dressed. I then arranged for hospital transport to collect me straight after. The hot tub sounds great so I will add it to my wish list :-)
dana32898 Ech1ck
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tiswas24537 dana32898
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maybe your improve if you can get back into a good sleeping pattern .lets hope so . regards tian .north yorkshire.
Ech1ck dana32898
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I was gutted when my company let me go , especially as I was in a post for supporting everyone else with proactive health care and it really frustrates me in the health industries (which you are part of too with the heavy duty housekeeping) it is very contradictory as a whole for staff versus clients.
I admire your strength in that decision and it sounds like a great step in getting your power back for what is right for you and your family.
dana32898 Ech1ck
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iv had a update on my circumstances I have worked for the hotel for 4 years as a zero hours being promised a contract it never happened for any of us so when I was sick i never got paid!!!
Have had talks with my supervisor and they will keep a place open for me for up to 6 months to a year if I can control it beta..which at the moment isn't lookin good but you have to take control.
Also it does effect your family....but Iv got to be honest going from having money to no money I'm struggling with that worry now...can't win.