1. Community
  2. Brain and nerves
  3. Movement Disorders

Struggling to cope with my tourette's.

Posted , 2 users are following.

stuart89372
stuart89372

Hello all, i was diagnosed with tourette's over a year ago. I have 2 types of tourette's one is motor tourette's and i can't remember the other.

​My tourette's are driving me nuts! From twitching my neck, head and arm, making strange grunting and squeeling noises, sniffing a lot and very loudly at that the list goes on. It's starting to really upset me and effect my life.

​My mum and girlfriend have gotten used to my tics/tourettes but i haven't.

​They make me feel really down, depressed and a bit like a freak sad

​I'm just looking for some friendly advice and help. Any advice on how to combat my tourette's or even a way of calming them down ? Any help would be very much appreciated. Thank you!

0 likes, 6 replies

6 Replies

  • sambo87
    sambo87 stuart89372

    Posted

    Hi my name is sam and my son also shows massive tourette symptoms and he has been like this for a long while now i didnt know what my son charlie does what actually something that was serious , can i ask how old you are and how you was able to get answers. 
    • stuart89372
      stuart89372 sambo87

      Posted

      Hi sam i am currently 19 but have been showing symptoms from a young age but i was diagnosed when i was 16/17 years old. My mum was concerned when she noticed i was twitching and making noises more frequently so she took me to the doctors and from there i was sent to hospital to see a consultant who specialised in tourettes. I have been put on all different medication but nothing seems to work. I find when I'm stressed out, Playing the computer or if I'm angry they get so much worse.

      ​i hope this helps a little.

    • sambo87
      sambo87 stuart89372

      Posted

      Blimey. . You've just described my son charlie he's only 8. I can't seem to get him looked at , he goes to the Dr's on a regular basis because he isn't eating either and he doesn't sleep so the Dr can't believe how much energy he has. He's been given some medicine to help him sleep because he just can't seem to shut himself down
    • stuart89372
      stuart89372 sambo87

      Posted

      I'd definitely say to the doctor that you think he might have tourettes and ask for it to be looked into. Thats what i had to do. When it comes to sleep I'm not great either i sleep most of the day and I'm up all night. Sometimes i go days without any sleep. My tourettes keep me awake most nights but I've found listening to music through my headphones can help.
    • sambo87
      sambo87 stuart89372

      Posted

      I'm going to get him in this week if I can, charlie hasn't found anything that helps as I don't think he understands yet. We watched a video on YouTube about children living with tourettes and he got really upset with himself and said he does what most of them kids do and then we wrote down what he thinks he does is unusual and I'll be taking it to the meeting with me on weds. Thank you Stuart you've been a great help.
    • stuart89372
      stuart89372 sambo87

      Posted

      I'm really sorry to hear that i felt the exact same when i realised i had tourettes. I felt really bad and down but after some time you stop noticing it.

      ​I have a YouTube channel of my own and it can be difficult making videos with tourettes but it's helped me become more confident and control them.

      ​Does Charlie have a favourite character from a cartoon or a show ? i could review his favourite character for him on my channel and give him a little shout out. Just to cheer him up smile

      ​Your honestly more than welcome i hope you find help at the doctors.

      ​If you need anything else I'll be more than happy to help!

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.