struggling to except fibro

Hello Sara

yes, it's a terrible illness that we have, and it seems so cruel.

For me it's been a case of adjusting to things and accepting that for now (and only for now) this is how things are, and to try and enjoy the things I can do, simply because I can still do these things. My mom died of/with multiple sclerosis, and at the end of her life she could do no more than use her head, for which she was always thankful. 

I admit that it doesn't always help to think of such things, and I get frustrated and angry with my state. All I can suggest is that you be patient and gentle with yourself as you aren't well, and it doesn't help things to be frustrated with ourselves. What we need is a stress free life *said with a wry smile* but it's usually the last thing around

Sorry my iPad went funny and I couldn't finish 

but take care of yourself and try and relax

gentle hugs 🌺

Hi sarapainfree, i know exactly what you mean, iv'e just had to go to bed after doing basic house work. it sucks... i hope you feel better soon and can enjoy your xmas.

gill.

xxx

Hi sarapainfree I too am angry frustrated fed up of feeling weak struggling to do the simpliest of things. But all we can do is get through each day as best we can. I was told by a friend change what you can change, what you cant let go. we have to learn to adjust where fibro is concerned, and come to terms with the fact were not the person we use to be. you go through different emotions with fibro denial anger acceptance the hardest thing is accepting that we arnt the person we use to be. that life has gone we have no choice but to go foward. you walk forward through life not back wards. we only have 1 life we have to make the most of it. trying to be positive is hard but ive found if you can be positive it does help. focus on your family and your husband. dont focus on fibro as that just makes everything worse. none of us know whats round the corner as Ive found out recently when I had a TIA in nov. we have to cherish each day with our loved ones like its our last. just do what can do listen to what your body tells you. pace yourself focus on you and your children husband. take care gentle hugs merry christmas x

Hi Sarapainfree

I know how frustrating you are feeling, but that is NOT going to help the Fibro.  Take one day and moment at a time.

Have you tried CBT (Cognitive Behaviour Therapy)?  I found that since having six weekly one to one sessions it has helped me cope with the day to day runnings of my life.

Also my herbal remedies that I am having have had some form of impact on my pains since Feb 2015. I can't discuss them on this forum but please do message me privately if you require further information.

Have a MERRY XMAS and let's all be positive during this festive period.

Take care and sending you gentle warm hugs from ME to YOU.....

Hi Sara

Just wanted to say yes its very hard with looking after kids, trying to do housework and be a 'normal' wife too.. Was diagnosed 19 years ago with this wretched thing and i do have good days now and bad days, having this with the menapause isnt great but i know there are worse than me. Do also consider you may have candida which can mimick the symtoms  of M.E. and fybro, i had both and going on a candida diet helped. Cut out sugery things, whit flour, white pasta and rice and yeast. Drink plenty of water and take probitics as well.

Sue x

Hi Sara

Did try to answer your post but its been withheld, god knows why as i never put anything in it i havnt put before in other posts!

Sue x

thankypu all for your nice reply sorry for late reply ended up in bed as ended up really weak and drained and emotional happy xmas to all x