Struggling to find diagnosis ( Lyme like symptoms) Any advice?

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Hi,

I am a 22 year old female who has been suffering from a variety of disabling and disconcerting symptoms for the past six months.

I am constantly tired mentally and have nonrestorative sleep (normal sleep study result).

I am also physically fatigued, although the severity waivers. Some days I am able to exercise well (within the perimeters of my other symptoms) and other days my arms and legs will feel like lead.

Along with the fatigue, vision and cognitive problems have become the most disabling. I noticed a definite change in my vision near the onset of some other symptoms. There was a sharp increase in floaters and increased blurry vision. I also have trouble focusing my vision, noticeable when reading especially. I have sensitivity to light and what I might describe as heat wave like distortion of my peripheral vision. I feel like I have less clarity of thought and am much less sharp. I find it hard to keep track of my surroundings and feel like I am a beat behind.

I have lots of pressure in my head but not explicit pain.

I have also had IBS type symptoms in the past, but with the onset of new symptoms have experienced excessive burping and bloat.

Have been to a multitude of doctors and specialists without result.

All test seem to comeback normal.

Any advice on finding a diagnosis?

Or anyone who has had similar symptoms?

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  • Posted

    Hi,

    I'm also a 22 year old female and have been dealing with these symptoms as well as some others for the past 7 years. My doctor diagnosed me with late Lyme disease, but I never had a definitive test result showing I have it. My immune system was compromised when I first had blood tests done, which resulted in false negatives. Once my doctor got my vitamins and minerals up to normal, that's when a Lyme test revealed I was on the fence positive. Antibiotic treatment didn't really help so I think I have other underlying issues, but I've been in the same boat as you, everything comes back negative. We just treat my symptoms, so I've been receiving "treatment" for hypothyroidism, Lyme, chronic fatigue, and chronic pain/fibromyalgia

    Last year I contracted Bartonella Henselae, a coinfection of Lyme. I have no idea how, I don't remember getting a flea or tick bite and I don't remember being really sick when I first supposedly got bit. 

    So what I'm saying is that even if you or doctors don't think it's possible you could have something, test for it anyway. Make sure your regular blood tests (CBC panel) come back normal first so you know your immune system is good enough to show accurate blood test results. 

    I'm not sure where you live but I've been seeing Dr. Thomas Moorcroft, who treats Lyme and is very knowledgable so he can usually put the puzzle pieces together to come up with some answers. His website is: http://originsofhealth.com and he does offer appointments over the phone too since he sees patients all around the US (and from other countries too I think). The only downside, he doesn't take insurance. Even if you don't make an appointment with him, this is the type of dr you'll want to see, so see if there are any like him around where you live. He also has a lot of valuable information about Lyme and other conditions (including unknown ones like chronic fatigue) on his website, so it's a good place to start.

    I really hope you get some answers soon. Hang in there, it could be as simple as just needing some antibiotics or another medication or some supplements. Let me know if you have questions or anything smile

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  • Posted

    Hey Debra, it certainly sounds like Lyme to me. I have had Lyme for about 8 months and I experience the same type of headache, just pressure on my head, along with the change in vision, sensitivity to light, and loss of clarity. I too went through multiple specialists and was getting so discouraged because every specialist just sent me to another and while I was convinced it was Lyme all the tests came back negative. However, rather than testing through blood samples one doctor tried a urine sample which showed specific strands of Lyme that often don’t show up on an average test because doctors and traditional medicine have yet to learn much about the disease. A tip for the bloating and burping is maybe try going gluten free for awhile because that certainly helped me and also helped to lessen the headaches. I hope this helps and I hope you find an answer soon!
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  • Posted

    I would definitely consider Lyme, but also consider Biotoxin illness. I am currently being treated for this. My symptoms were very similar to yours. Biotoxin illness affects around 24% of the population and can be triggered by Lyme, mold, bacteria, phisteria etc.  It can mimic Lupus and can effect most systems. It is pretty much the body being unable to remove toxins like other peoples can. So you get sick and stay sick until treated. I would get checked for Lyme for starters but if it is negative or your symptoms do not resolve after the antibiotics I would consider this. Hope this is helpful.
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  • Posted

    Your symptoms almost completely explain mine.  I am a 28 year old that suddenly got sick with flu-like symptoms initially back in December six months ago and slowly got progressively worse until I couldn't leave home or work at all.   It may be lyme...I would go look for a lyme specialist asap and get tested...some doctors might even start treatment for you right away.  I've been on doxycycline now (antibiotics) for 15 days and finally starting to feel slightly better... I have a long way to go though.  Hope this helps.

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