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I have been suffering with many symptoms that tick the Lupus box for some time now. I developed some neurological symptoms last December which have been investigated and nothing else has been detected which is a relief, in that year I have really struggled with the fatigue and moreso the severe muscle and joint pains, yet my inflammatory blood levels were 'normal', some days the pains in my thighs and upper arms are so bad it feels I have been in a car accident! Even getting sleep at nights is difficult as if I lie on one side in a few minutes the pain in that leg, hip, arm keeps me awake. Hands, wrists and fingers now are painful, like a widespread arthritic pain but like I said inflammation level were ok. I have a slight butterfly rash on one cheek only which flares up when the pains are at their worst, dr just said Rosacea and to use some steroid cream? The only blood tests that have come back 'inconclusive' were the ANA test and the Lupus Anticoagulation, which are being repeated soon, but gp just keeps saying I don't think it could be lupus! And I feel passed from pillar to post to neurologist and now she says perhaps an endocrinologist may be able to cast some light???? Anyone else been in the same boat regarding diagnosis? Feels like each day I have something new to contend with and each day getting more pain and limitations .
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