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I am 20 years old, diagnosed when I was 18. I currently work part time, 20-25 hours while also doing my degree from home with the Open University over the course of 3 years. I chose to do my degree at home due to my fatigue.
I have recently had to reduce the amount I am working as it was making me immensely ill and thankfully, my manager is super understanding and has agreed to give me set hours each week.
My worst was when I was diagnosed, I was still at College, my manager asked me to hand in my notice when I told him about my condition. I felt worthless. A teacher at the College was trying to get me kicked out because she thought I was skyving. Beforehand, I had doctors tell me I was wasting their time and money and should stop returning. Found a doctor who believed me and thankfully things got a lot better. I am in a job that I love, doing the degree I want to do and all the friends I have now are ones that are extremely supportive and my boyfriend is supportive also.
However, things seem to be digressing back to how bad I was 2 years ago and I worry about what this means for me. It's hard talking to my friends or boyfriend about it all as they don't fully understand and have debated joining a forum for a while for support as I often get really down about things and just need someone to understand how I am feeling for once. It's utterly frustrating talking about this to people who can only imagine how I feel on a daily basis and even then, they don't know what to say or do so it's quite discouraging.
I'm hoping to just find some people to talk to this about, it would be insightful to see how they deal/cope with their fatigue and if anything in particular helps them that might also benefit me.
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