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Struggling with my one year old

Posted , 8 users are following.

tina41716
tina41716

Hiya im 23 and for months i was told I only had aches and pains but after months of suffering i was refferd to rumatoligy were I was told to I had rumatiod athrites to say I was heart broken was understatment exspecally when I got told it was spreading very agressivly. I have a one year old little boy whos so full of life i am strugglig with constantly feeling tierd not being able to sleep with the pain some nights my boy friend works long hours I now cant bath him unattended i cant play with him on the floor as i struggle to get back up. Im on treatment but it doesnt seem to be helping even carrying my son down stairs is becoming a bit of a dangourose expiriece as my arms are so stiff in the morning. Going out alone with him is now not an option incase i need to walk with the pram. I dont really want to up to let people know how am struggling. Has anyone else been in this position and how did you mange.

0 likes, 14 replies

14 Replies

  • chrissie72261
    chrissie72261 tina41716

    Posted

    hi Tina so is mine progressive but I've had it since I was 7 and now 59 Tina you have to tell your friends and family want you have and you got try a get support have you had physio need to keep you joints moving don't let them get stiff ivevgot rods and fused thumbs and I can carry a fat cat with help I ware splints havevyou tried them ask if you can have splints help support hands wrists Tina if you casnt get help try social services I've got a lovely lady she has RA and help me with thing for the house RA tablets take time getting in your system TNA don't disppear or loose hope try arthritis care uk if in uk they can help you
  • danny16391
    danny16391 tina41716

    Posted

    Hi Tina also contact your occupational therapist,you do need help.

    God bless

  • Tricia55
    Tricia55 tina41716

    Posted

    Hi Tina, So sorry to hear your struggling, I do agree with all the others you really do need to let people know your suffering and that you need support.  

    I like you have bad arms right now and find that I am scared to hold small babies as I don't know if I can hold them for long, therefore I tend to make sure I'm sitting down and can support my arm on a cushion to be able to hold a child.  

    I find it infuriating as I want to play with them.

    I hope you get help and manage to get a bit better.

  • Light
    Light tina41716

    Posted

    This sounds heart breaking, Tina. Please get help. 

    You were diagnosed with RA because of your RA factor? Or other reasons?

    If you have the RA factor in your blood and the pains are symmetrial and start of bad and get better during the day, these are the signs of RA.

    It could be Lyme's diseases, yes, but it could also be other things. I think you have to trust your rheumatologist on this one. I'm not sure why checking for Lyme's suddenly became urgent, but its worth keeping it in mind if other symptoms don't gel.

    Most important is that you pull in your family and friends to help you and explain your situation to your GP and/or social services.

    • tina41716
      tina41716 Light

      Posted

      I wa only refers when they decided to bloods and I had a high rumatiod factor before that they told me it was always akes and pains had me believing I was a hipocondract I doubt it's Lyme disease but thank you for the advice smile
  • gemma79405
    gemma79405 tina41716

    Posted

    Hi Tina, mine developed during pregnancy and then hit me like a train when my 21 month year old was born, so know exactly how you feel. Looking back I wish I had asked for help rather than struggled. I also found I didn't want to take pain killers because then I felt spaced out. Don't forget having a one year old is hard work even if you are firing on all cylinders!
  • donna82193
    donna82193 tina41716

    Posted

    Hello. Im so sorry to hear your struggling. I to am struggling with my two children but they are a little older. May I ask how u know its aggressive? I became ill in November last year and its progressed very quickly where all my joints hurt and my toes, wrists and fingers have already started deforming.

    Thankyou.

    • tina41716
      tina41716 donna82193

      Posted

      Hi when I went to the doctors originally it was only my left leg but by the time a was refured I had damage to my wrist joint they said I must have had a bad flare or and they didn't ex
    • tina41716
      tina41716

      Posted

      Expect to find any damage but also I had a high rumatiod factor by the sounds of it your the same as me my fingers are starting to deform make sure they know what's happening you need a higher dose
    • donna82193
      donna82193 tina41716

      Posted

      Apologies for the delay. My fingers and toes are already deforming. Its scarey how quickly it progresses. My next app is next month where we discuss meds etc. Still off work at min. The way its going im not sure i'll ever go back :-(
  • danny16391
    danny16391 tina41716

    Posted

    One piece of advice I can,get yourself a journal and keep note of your illness eg.when your pain is at its worse and when it starts to abate.Even take note of what you eat and drink over the day and how your meds make you feel,this is a help to your RA Consultant,also take note of what he says to you.

     

  • aren87309
    aren87309 tina41716

    Posted

    My heart goes out to you...I can't imagine this at your age (I am 57 and my kids are grown).  I am going to take Daniela's advice and get checked for Lyme's disease.  For you, one thing that occurs to me is 1) something related to your pregnancy.  Have you recently started a new diet or supplement?  But the first thing that jumped out at me was your environment.  Have you moved into a new home recently?  Or gotten new rubber-backed curtains or  carpet or a new mattress or sofa?  I have heard that the toxins in these types of items can cause radical reactions in some people.  I really hope you can find the solution...
  • Light
    Light tina41716

    Posted

    Forgive me I haven't read all these posts, so might be repeating or have missed something... (my issue is my eyes right now!)

    But to both Tina and Donna....

    If your hands are already deforming because the drugs aren't strong enough, and if you can't get a quick appointment with your rheumy, go back to your GP, and show her what's happening. Don't delay!

    If you're already on low doses, she's authorized to raise the dose a bit.

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