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struggling with my tinnitus since 5 years

Posted , 6 users are following.

neomi
neomi

Hello im new in here.. i hope everyone is well. Was happy to find such forum where ones can find a little support and hope by communicating one another and sharing experiences. Ive been struggling with my tinnitus since 5 years it came out of sudden. Went to 3 ORL (assured all was fine) 3 tmj dentists (assumed that my severe teeth grinding out of stress at night, might have led to my tinnitus and its too late to recover anything) no one could actually helped with my jaw (face muscle cramps) or tinnitus or the troubles coming with it ( headaches, diziness) instead they all advised to adjust my life style since i'll be living with that sound in my head 24/7. All my life. Im not sure if it has anything to do with the anxiety medecines(seroxat, venlax..) i used to take 4 years ago but im sure that the stress had a big say in my life. Im 34 and hoping one day we will all wake up 'sound free' since i know how frustrating and paining is to live with tinnitus.

2 likes, 37 replies

37 Replies

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  • hope76097
    hope76097 neomi

    Posted

    I will pray for you neomi. As with many of us you are looking for the root. There are over 200 possible sources. I suggest you disregard the negative advice of learning to live with it because it is permanent and to hold on to faith you will find what is best for you and a possible resolution. I have had many illnesses in the past resolve and that is my faith for this ailment too. 

    There are so many suggested sollutions and not one that fits all. If you're a person of faith, ask God to show you only the right things to try so you don't get caughtup in false ideas.  

    Today I'm going for a hearing screening and a head and neck massage. My tinnitus comes and goes and I hope this treatment today has some effect. All we can do is try to relax, enjoy life, and try different things as we have a mind to do so. 

    • hope4cure
      hope4cure hope76097

      Posted

      Did the head and neck message work? Message cure everything for a shot time. I love Sweedish message they get deep in the muscle tissue. So totally relaxing. 
    • neomi
      neomi hope76097

      Posted

      Thank you for ur kind reply ill pray for u as well and for all of the T sufferers. Hope the hearing screening will come out clean for u and that ull find some relaxation with massage i must try it some day. My hearing screening came out normal but with some sensitivity to loud sounds (guess this is the case for all T sufferers). I pray daily to be led to the right solution or else to handle with faith and patience my prob. Ill be praying for all of us knowing its hard enough having to deal with life troubles apart of having such condition.

      Sending positive thoughts and wishes ur way.

    • hope76097
      hope76097 hope4cure

      Posted

      The head and neck massage was heavenly. The crunching and tension loosened. The tinnitus is still there. I believe the sounds are in our brain. Something is misfiring. We will try all we can until it is figured out. I learned from my hearing screening lady not to be in total silence. Not only does some noise mask it and keep your mind off it, doing so makes the monster smaller and you may actually retrain your brain to listen for outside noise. I work in quiet so now am going to add noise to my environment as I can. I don't focus well with a radio on so will see what occurs. 

    • hope76097
      hope76097 neomi

      Posted

      That is terrific. Yes, we join in prayer together. We follow what God leads us to. We draw on him to help us handle this. 

      My hearing is perfect from the screening. I learned we spend too much time looking into our ears and it's like looking into an empty box because the problem isn't there. It's in our brain. 

    • neomi
      neomi hope76097

      Posted

      Hehe yea one of the docs told me im going insane and the voice is only in my head. I refused to go back to anti depression meds i was 26 back then having only the symptoms of a broken heart after the breakup with the guy i loved for 3 years.. i couldnt sleep so the dr recommended i take seroxat to sleep better.. and it all started .. it was real Hell for me.. i couldnt handle the side effects i lost my mind .. lost 3 years until one day i woke up and decided to threw away everything with prayers i succeeded but started dealing with diff kind of pain.. head neck chest back and of course tinnitus.. but despite all i thank God for everything..
    • hope76097
      hope76097 neomi

      Posted

      One step at a time. There is a book on Amazon God Knows the Way Through Your Tinniuts Wilderness that maybe be helpful to you since you are a woman of faith. I am having quiet today and yesterday, so it is possible. 
    • neomi
      neomi hope76097

      Posted

      Thank you dear.. i appreciate ur advice.. ill surely go thru it .. God bless u always xx
  • clivealive
    clivealive neomi

    Posted

    Tinnitus is one of the many symptoms of Vitamin B12 Deficiency.

    Are you able to eat foods high in vitamin B12, such as beef, liver, seafood, fish, cheese and eggs as this is the only natural way of obtaining it?

    • neomi
      neomi clivealive

      Posted

      Ive took B12 supplements for almost a year ended up having a high rate of B12 in my last blood test it was highly above normal so the doc cut the supplement for me. Although it helped with my head pain and burning sensation. I maintain a healthy life style food hoping it will help one day after all.
    • clivealive
      clivealive neomi

      Posted

      Make sure to keep your Folate level healthy - plenty of green vegetables - as this is essential to process the B12.  The two work together.

      You cannot "overdose" on B12 as any excess is excreted via your urine so a high level in your bloodstream shouldn't be a worry.  If the symptoms that it "helped" return don't be afraid to start supplementing again.

      I wish you well.

    • hope76097
      hope76097 clivealive

      Posted

      I have always eaten a lot of cheese and eggs. It is more than a B12 deficiency for me. I have been on supplements too for a month. 
    • neomi
      neomi clivealive

      Posted

      Oh thats good to know .. thank you much for the advice. Bless you.
  • leanne08979
    leanne08979 neomi

    Posted

    Hi neomi I'm 27 with really bad with tinnitus and I'm 27 weeks pregnant, I also got it from grinding my teeth at night, have u been sent for a mri? Iv got slipped disk from grinding.

    • neomi
      neomi leanne08979

      Posted

      Hi Leanne, sorry to hear that, wish u well dear along ur pregnancy.

      Ive never been sent to mri bcz the tmj specialist identified my cause to be muscle tension, and a bit alteration in my bite along the grinding. As i mentioned before i gave up looking for causes after so many opinions with no resultssad im stuck with muscle relaxing meds and exercise.

    • jacqueline01135
      jacqueline01135 neomi

      Posted

      There are only TWO reasons for-- T--- inner ear damage caused by noise..Which can be addressed surgically,.

      Or ,a bang on the head, causing your brain to send  wrong signals too the hearing department ,about filtering out noises by recognition. and, not cancelling them out. I have the latter.  which seems to respond to stress.(mine ) so the noise varies.,but never goes away. the White

      noise machines do help, but you have to have the patience of Job

      to set them up. 

    • neomi
      neomi jacqueline01135

      Posted

      Hi Jacqueline, guess my case is similar to urs and the noise in my head is constant never goes away although it may increase or decrease according to my stress.. i went to an ent who assured theres nthg wrong with my ears although i cant support somehow loud voices, after a tmj specialist examined me he concluded that my 'bruxism' might have led to tinnitus and he assured that nthg much can be done.. i try to forget about the sound but the additional symptoms i got along remind me of my prob.. (lightheadedness, headache, neck aches...) so its impossible to just forget it! I had 2 years ago episodes of headaches with burning sensations on the right side, but they went away after b12 supplementation or thats what i thought.. anyway, the white noises help indeed and im trying to just cope with T now.. wish one day we all become T free xx

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