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It's almost three months since I first went to A&E with dizziness and palpitations, fearing I was having a heart attack. Since then I have seen about six GPs (it's the nature of London doctors that you rarely see the same one) and have had blood tests and a 24-hour ECG which produced nothing of note. Second A&E visit (this time with numbness in left-hand side and nausea, fearing stroke) said I likely had labyrinthitis and gave me prochlorperazine and suggested reading up on CBT. At follow-up GP visit doctor said it should be over in a few weeks, and (again) refused to refer me/MRI etc. Seventy-five days have now passed: the strange sensations are still here, and the doctor today said that probably meant it was Benign Paroxysmal Positioning Vertigo instead, but that it wouldn't explain the heart issues or the muscle weakness in the legs or the numbness on the tongue or various other weird sensations. I have another appointment with a GP who specialises in ENT next week (each appointment takes two weeks to get and lasts 7 minutes) and am very much hoping for something more substantial!
I feel as though I am stuck in going round GPs, none of whom know that much about it or think it is very serious, and want me to just sit it out. Perhaps that's fair enough in the underresourced NHS. Meantime it's driving me round the bend. If anyone has any advice on how to get through the GP gatekeepers to, say, a neuro-otologist at UCLH, I'd love to hear from you. Plus does anyone else have those symptoms: muscle weakness, twitches and nerve pain in legs, pins and needles or strange-feeling tongue?
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