Student Nurse would like info on Rheumatoid Arthritis please
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Hi i am a student nurse in my second year and am doing a mini portfolio on Rheumatoid Arthritis and would like some information from a patients point of view please.
What is it like living everyday with rheumatoid arthritis?
What restrictions if any does it impose in your lives?
What type of aids do people need in their everyday lives to get through the day?
What would you say is the most prominent side effect of this long term condition, pain, reduced mobility ect?
Any other information you are willing to share would be much appreciated.
Thank you all so much
0 likes, 4 replies
AJO2012
Posted
The worst thing was not knowing if it would ever get any better and depression also getting the treatment that I should have received was a trial, I kept reading about new treatments in the ARC magazine but was not given them.
After taking Etoricoxib for many years It is now mostly under control until I had an extremely bad flare up in my right wrist after a cortizone injection to my right shoulder to treat pain and once again even though my gained knowlege of my condition meant that I should have been put on Methotrexate or similar I was once again refused treatment and then kept waiting for a major wrist fusion operation that I then needed to my right wrist becauce of the damage that the flare up had caused!
When having a bad flare up it can cause severe tiredness/frustration and depression.
I have also experienced a total lack of understanding at work both by colegues and managers in the past.
banksy
Posted
AJO2012
Posted
It can go into remission and I have had periods of being very well along with periods of extreme pain, disrupting my sleep and daily living.
Iam 45 now and have found that cortizone injections /steroid tablets make my condition worse but NSAIDS taken daily very usefull, also parecetamol when the pain is very bad, I have taken Co-codamol when the pain is very severe but the side effects of constipation where too great that I had to stop taking them.
Taking a multi-vitamin with Probiotics helps with tiredness and stomach problems due to any side effects.
sarahwilks
Posted
As there is no cure for this long term condition it seems to be pain management that is essential to continue with every day life.
Thank you again for all your comments.
Sarah