Subcutaneous Granuloma Annulare 6yr old daughter. Please say someone knows something!!!
Posted , 3 users are following.
My daughter has recently been diagnosed with SGA, after having a biopsy on a lump on her foot. We were initially told it could be cancer, and after what can only be described as a hellish few weeks we were eventually given this recent diagnosis. After the lump was removed from the top of her foot it rapidly grew back, bigger and bigger and bigger until now it is covering most of the top of her foot. I am getting no answers from the "specialists" who seem to know very little about the condition. I am basically being told that I have to wait and see what happens. I have also been told that it has links with rheumatoid arthritis even in a child of her age. I am reaching out and praying that somebody must have some experience of this variant of GA. I would be so grateful for any info, no matter how small.
0 likes, 2 replies
nora94022 awalker37
Posted
Hi, what country are you in? I am in the US and my doctors here did not cut off the lump, but rather injected it with a steriod. It disappeared (slowly) and never came back. It was on my elbow. My "lump" was biopsied. Was a biopsy done for your daughter to confirm GA? Before my lump was biopsied, I was told it was something else also. It sounds strange to me that you are not getting answers. Most dermatologist I have been to in American are very familiar with GA and know how to treat it. Have you tried visting a physician at a teaching hospital where dermatological research is being done?
awalker37 nora94022
Posted
Hi thank you for your reply! I'm in the uk, and not much seems to be known over here. She had an ultrasound initially, and from they they were concerned it could be cancer and so removed immediately. A biopsy was done but the results came back inconclusive. All they knew was that it wasn't cancer, but not what it actually was. It was only when within a few weeks the lump began growing back that they then diagnosed SGA. The weirdest thing is that she is currently under the care of of a paediatric orthopaedic consultant but have been told this should be a dermatologist. I think though this is because the lumps she has are hard and almost bone like? Maybe the hospital felt this was the most suitable dept to be seen?? Anyway I'm going round in circles now as the lump just keeps growing (it started the size of a very small grain of rice and is now easily the size of the width of a tennis ball) and removal will mean that it will almost certainly come back but yet whilst it's still there she can barely get a shoe on her foot : (