Submandibular gland removal

Posted , 12 users are following.

I have today had my follow up at max facial regarding my gland and they say the only options now are to keep massaging the salivary gland when I have infections or to remove it. They say removal will be better as eventually it will stop working now anyway. I had a stone which I removed myself and now keep getting a yellow spot (not apparently another stone as the silogram I had done did not see one) so it's no doubt infection. It has subsided again but it has a few times and really I know it's "until the next time".

I don't like the sound of the operation and the risks involved really but what risks are involved by leaving it be even if it did stop working? Would it continue to get more infections or cause more damage?

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  • Posted

    Dusty.....

    Please let me know about your swelling after Monday. I swelled up after my cholesteatoma but it was not hard swelling. I hope it's just normal. It's a nasty operation and I must admit I am scared for it. I wasn't with my ear and I even had a large piece of my skull used to graft on my ear. This one sounds worse though.

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  • Posted

    Hi Karen do not worry I think my other problems have made things worse.  I have immflamotory arthritis which attacks my immune system and I am positive it's all to do with that because the consultant said the pathologist does not mention finding a stone but very badly imflammed in many areas of the gland and I think that this is my problem now.  If you can go through all that you have been through you will cope fine with this.  Just make sure they give you some antibiotics when you come out of hospital plus antiseptic mouthwash and ointment for the would although they give you eye ointment it is used to help with the scaring.  Good luck and hope it goes well for you let me know how you get on x
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    • Posted

      Thanks again dusty day.

      So you have immune problems and arthritis too. I have to use eye ointment at night (although haven't for a while as it was removed ftom the market so my pharmacy says) due to dry eyes and I also have sore joints and antibody problems. That is why I was thinking sjogren's. I wonder if they test the submandibular gland for sjogren's? I know they can do it with a lip gland but if they are having to remove a major gland I wonder if they do check. Why do they give you eye ointment?

      I had the floor of my mouth lazered too about 3 years ago due to a patch which was thought pre cancer but they said it was biopsed and was ok. It was on the opposite side and also slightly forward of the submandibular gland. I wonder if they damaged my gland during this surgery maybe. I was only supposed to have a little biopsy but it took them so long to get me into hospital that they gave me a general and lazered it for the best they said.

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  • Posted

    Morning Karen yes  have immune problems and I think that it all linked yes Rhematology said it was not but if you look on Internet it says it is.  Mine is attacking muscles.  I also got under active thyroid and problem with liver not through drink never drank alcohol so put it down to virus or medication.  I am also borderline diabetic although I wish they would just say I am either one or the other I always seem to be borderline for everything.  I sometimes think they pull these things out of a hat.

    On the good side I think my face is not so hard today so I praying that by Monday it will have improved more, I am impatient.  My lip had dropped and that looks a little better also.

    They give you the eye ointment to put on the scare to help it heal I presume.  

    The consultant did say to keep using it so I am.

    Have a good day 

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  • Posted

    Hi Karen -

    I'm unsure when you'll get this response, however in the meantime let me give you and others here some hope.. You see, I underwent submandibular surgery just over Memorial Day weekend.

    My surgeon, who was an Associate Professor of a world renowned teaching hospital stated that yes, the stones may come back. Here's the good news for you and possibly others that may read to gain knowledge and help..

    My surgery was done "under the tongue with an incision. My 4 stones were very large by normal standards (2 cm+) and, the stich were self-absorbing within 6 weeks. To date, I've had no issues and in fact, have understood "lemon drop candies" that promote saliva to help.

    While medical science doesn't know the cause or reason for the stone development - what they do know, is the best way to treat and remove them. On a personal note, I research for months the ultrasound, shockwave, laser, etc.. techniques (but they were new and somewhat unconventional).

    So I trusted my doctor and the team assigned to me. Yes, there ARE risks, but that's why you need to search out the BEST in the ENT field. Preferably one who actually "teaches" and, is difficult to get an appointment with. Remember, one slip of the knife in the wrong nerve and it "could result" in paralysis to part of that side of the face.

    The parathyroid gland is much more complex but stones rarely gather there. I've read of people having the gland removed entirely and, in fact my own surgeon said if they do come back, the gland would need to be removed.. one caveat though.. I'm 50.. and I've been "dealing" with this annoyance for over 25 years... if they come back, I highly doubt I'll be having a 3" incision under my jawline with potentially worse complications.

    Numbness of the tongue side operated on is normal and should dissapate completely. Stay strong, keep a positive attitude and know 8n your heart everything happens for a reason..

    I pray you are feeling better but just felt compelled after nonslip this morning to write you and give you and others my own personal account. For those considering submandibular surgery - please go to THE BEST.. Whether that be the Director of Otolaryngology at Mt. Sanai, Salone-Kettering, Columbia Presbyterian, John's Hopkins, Mayo Clinic, etc.. search out the best. It's truly worth it.. this is NOT a surgery I feel a local ENT should be performing. .. just my two cents..

    Good luck to you Karen and everyone else..! Also in closing, my "TINNITUS" in the same ear as the stone has almost disappeared.. coincidence..? I have no idea, but it's virtually gone and that, was much more debilitating than the swelling of the stones.. food for thought..

    God Bless..!

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    • Posted

      Hello StatusAnonymous, 

      I just had my submandibular gland removed 2 weeks at NYU Langone by a wonderful surgeon. My incision is healing nicely and I'm on the right track apparently. However, my dry mouth is crippling me and really diminishing my quality of life. I had the dry mouth before the surgery too (caused by sialadenitis) and it still hasn't gone away. Did you experience dry mouth too? If so, for how long did it last post surgery? And what exactly did you use to counteract it? I can't find any good sugar free lemon candies so I'm sucking lemon wedges (ugh) and using biotene products...

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  • Posted

    Well two weeks ago I removed another stone from my gland. It was bigger than my first one and since then the gland has not swollen again.

    I have yet to let max facial know of this but I shall.

    I knew I had another stone and it was in the tube but even after having a sialogram they told me I did not. I could feel it and see it and took regular photos to show them.

    I hope now I don't have any more trouble. It's early days I guess but it goes to show even silograms can be wrong.

    Thanks to all for the replies.

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  • Posted

    Hey ive had my gland removed a little over a month and the  incision isn’t rock hard still no pain is this normal? 
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    • Posted

      My jaw has gotten sore again, been haveing headaches on the side of the surgery but I’m filling much better after surgery. I can eat without the pain while chewing, if you have to have surgery it’s well worth it take care of it soon so it doesn’t cause infection which happened to me and I almost died from. I highly recommend you have a ENT doctor/surgeon take a look at it!!!

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  • Posted

    Hi all, i had my gland removed 7 days ago. All was great with no pain at all until yesterday when i ate. Above the incision on my neck i had a very hard lump form that went just under my jaw bone, it was painful n has subsided this morning but i haven't eaten yet. Is this normal or a sign of infection, how long should i expect the pain to b there for and will that lump stop forming? Any advice will b greatly appreciated, i feel like crying my eyes out especially being 7 days until Christmas. Thanks

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    • Posted

      Hi Cindy, the doctor should have given you antibiotics after surgery, and how are you doing now? I’m haveing pains in my jaw/ bone I’m thinking it the nerves comeing back.
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    • Posted

      Hi Jim, thanks for responding. Everything is settling down nicely now n its been a month since my operation. I still hardness where my gland should b but nowhere near as big,im guessing that'll go away in time. My Dr went on holidays after my op so still yet to have my follow up appointment. She didn't give me antibiotics after the op which is why i think i panicked a bit b4 especially when the swelling got worse days after. I did google why there is such sharp horrible pains in the area so i agree with u in that the nerves reconnecting. My jaw bone is still a tad tender but other than that no pain now, yay. U sound as if u r on top of yours, happy for u n i hope ur enjoying eating normally again as i am. Happy new year 😊

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    • Posted

      Hi Cindy, I had my submandibular gland removed 2 weeks ago and the worst thing I'm experiencing is the dry mouth. My original problem was sialadenitis (infection in gland) which caused dry mouth among other things, so I had it before I had the gland removed but it hasn't gone away yet. Just wondering if you experience this after your operation? If so, did it last long? It's really making me anxious...

       

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    • Posted

      Hi SnickerDoodle, wow your situation is completely different to my situation. I had 2 stones in mine, so whenever i ate my throat swelled right out. I never had an issue with the dry mouth before or after. My surgeon told me that we actually have 7? other salivary glands so i wouldn't n haven't noticed being one down. Im all back to normal n enjoy eating again, bliss! I really do hope your situation gets sorted, that must be so frustrating for you

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