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Subsiduary organs responsible for bowel disorder

Posted , 3 users are following.

fiona51388
fiona51388

Hi, after six years of agony with a prolapsed bowel, frequency based constipation and "one at a time" taken to a whole new nightmare level, "stuck halfway" syndrome, and the ensuing exhaustion, pain, discomfort and self disgust, I am going to ask my Consultant to test my gall bladder, spleen, pancreas and liver for any problems which may relate to why I have such a radically abnormal troublesome bowel.

It didn't occur to me to go down this route until a friend mentioned that often other organs can be the root cause of the problem and I feel it is fair to say that nowadays Consultants DO NOT do the job they are paid to do and suggest things to the patient such as this, it is almost wholly down to the patient to do the donkey work, which I feel is grossly unfair as they are the professionals and the patient may have learning or mental issues, that make it difficult for them to recognise these factors, plus if they do have mental health issues, quite abusively in my opinion, their symptoms are often put down as "behavioral".  Now I KNOW this to be true from six years of ghastly experience of the NHS system, and I am niether lying or exaggerating, I speak honestly from experience.

Anyway I have a proctogram on the 29th Feb, and no doubt it will be a month or even two month wait before I can subsequently get to see the Consultant but I will keep you posted, and I going to be quite firm about wanting extra tests as as well as my friend pointing this out I have read in a medical journal that other organs can be the root cause of bowel problems, and I've had six years of being palmed off and I've had enough!  Fiona

0 likes, 4 replies

4 Replies

  • philippa61759
    philippa61759 fiona51388

    Posted

    I was diagnosed with IBS last May after three and a half months of pain and panic.  My problems started after a bad reaction to chiropractory, deep tissue massage, a botched blood test which has left me in recurrent pain and being laughed and demeaned by a nurse.
  • astrozombie
    astrozombie fiona51388

    Posted

    Hello Fiona That sounds absolutely awful. I move between constipation and what some of my friends call my Usain Bolt moments when I am no longer in control and my body becomes like Hal and attacks me. I understand self disgust and partly why my last relationship broke down. After a good 2 -3 hours in the loo and I am exhausted and perspiring. It is not a good look and also occasionally suffer sickness. 

    Please let us know if this yields results.

    I have spoken to doctors and consultants and they have openly said IBS is a matter of elimination. Think Sherlock when all that remains must be the answer. It may not be IBS may not be one IBS but the medical profession are yet to work it all out. It is definitely an area of great mystery even to the specialists so it is not that they are not doing their job they just don't know and they do rely on us to give them the information.

    On paper I have mental health issues but I do not see it. 

    Please do as anything to reduce or even better eliminate these damn symptoms would be amazing. 

    Last Christmas I saw signs slowing drivers down on the motorway so I jumped off onto another motorway I did not know just to have the freedom of knowing there was the possibility of a service centre and as you can imagine the sudden jolt and need to get off now almost ended in an accident as I was too panicked about my stomach. This is how crazy it has made me. I made the right move as the panic meant I did need to hide out in the service station for awhile.

    I have had had enough too after 5 years but do feel a little guilty saying that as some people have been suffering 15 or more years so I am a newbie in some respects.

    Good luck 

     

    • fiona51388
      fiona51388 astrozombie

      Posted

      I think my point was the Consultants should be doing their utmost to suggest things to the patient and not the other way around as afterall they are the experts, and otherwise things will never get eliminated and the source of the problem identified, its not fair to be relying on the patient for answers, i have waited five years for my gall bladder to be looked into and am tired of always having to make suggestions, it should be the job of the Consultants.
    • astrozombie
      astrozombie fiona51388

      Posted

      Over the years they have improved my diet, although not to the satisfaction of everyone in here, so out went white bread, processed meat, ready meals etc etc etc. It took a long time to get a lot of rubbish out of my diet. Now I eat what doctors recommend so they have made suggestions to me. I now take more regular exercise which I was not before. 

      My point was I do not think they are the experts. I have eliminated certain things but they still have not identified the source. The bowel seems to be very complex. I think the doctors can only take things so far at the moment.

      Admittedly 5 years is a nonsense. Have you asked why so long? 

      Have you had your bloods checked. I know this is basic but I think issues with gall bladder and liver show up in this as when I was 19 I was coughing blood, nothing to do with IBS, they took my bloods and I had to seriously cut down on alcohol so if they saw that then I am sure gall bladder would be included but I am not a doctor so you can ask but if that is the case s/he would already know that is not the reason. Admittedly I would expect the doc to tell you this to put your mind at ease. I suppose you could ask for an ultrasound but massive delays on this so when I damaged my tendon rather than wait I went private just for that. It is an option or just ask to be put on the list.

      Sadly I think the suggestions will have to come from you, and all of us in fact  as our combined knowledge is greater.

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