Sudden leg weakness, dizziness and other symptoms, don't know what it is
Posted , 6 users are following.
It started when I was 14 years of age (am now 33) where I had certain symptoms such as weakness, tingling, tremor, partial numbness, muscle twitches, burning pain, pins and needles in my right hand, wrist and fingers and then the weakness and also muscle heaviness spread up that arm and then it spread to my left hand, wrist and fingers and then up that arm as well. I would also drop things when holding them. Then the same kind of symptoms spread to my legs from hip to toe with additional symptoms such as an abnormal gait and falling episodes or almost falling because of leg weakness. Then I started experiencing symptoms like my legs, one leg or one foot 'freezing' so that I couldn't move it temporarily. Then I started experiencing more widespread weakness and the symptoms, not just the weakness but also pain and muscle twitches spread up my torso and then it spread up to my throat so that I had trouble swallowing and I have a 'weak, soft-spoken voice. Then the symptoms spread into my face so that my eyelids drooped a little. Things improved partially but then returned with a vengeance when I was 29 and were much worse than when I was a teenager. I walked with an abnormal gait more severely, had a lot more falls which is over 200 falls in 2 years and the falls have continued, chronic dizziness, more weakness, my legs, particularly my right leg suddenly giving out on me. Also, the reflexes in my knees are abnormal such as poor or absent in my right knee and exaggerated in my left knee. Don't know what this could be from and was wondering if anyone may be able to help shed some light on what this may be.
1 like, 12 replies
elaine05672 rebecca77788
Posted
So sorry i have not heard of this and not sure what it could be, I am so sorry you are going through this what has your Dr said?
Elaine.
derek76 rebecca77788
Posted
Anyone in your family with any similar symptoms?
paul90127 rebecca77788
Posted
Treatment is rather patchy.
I was diagnosed in January of this year. I have been receiving Intravenous Immunoglobulin (IVig) every 2 months since March. Basically, that attempts to boost your immune system and hopefully repair damage in the synapses.
Good Luck
Paul (EssexUK)
derek76 paul90127
Posted
paul90127 derek76
Posted
I recently had a procedure on my wrists ( both) for arthritis. They injected steroids into the wrist to ease the pain.
I found using walking stick for the PN was exacerbating the pain in my wrists. This has been helped by a change in the sticks suggested by the physios attached to the local Orthopaedic unit.
They are returning next week to assess my balance needs and suggest exercises that will help.
Will let you know how this goes.
Paul
derek76 paul90127
Posted
rebecca77788
Posted
derek76 rebecca77788
Posted
rebecca77788 derek76
Posted
derek76 rebecca77788
Posted
Essexgirlinpain rebecca77788
Posted
rebecca77788 Essexgirlinpain
Posted