Suffering from undiagnosed neurological disorder sine I was 15

hello everyone I have no idea where to start, I’ve been suffering from tremors and pain since I was 15 and initially diagnosed with Complex Regional Pain Syndrome. I have since been suffering from multiple degenerative joint conditions which required surgery Hips, shoulders. Now I’m 22 and things are just escalating particularly in the last 14 months or so.

My current day symptoms are muscles are weak, have daily tremors my left side is mainly affected, headaches/migraines frequently, I can’t see at night eg driving or navigating around the house in the dark. I actually ended up on the wrong side of the road driving about a month ago because I couldn’t see the white lines. Other symptoms are; pain, body either feels burning or freezing trouble regulating my body temperature, feet and hands turn purple or red, hands are shaky when texting or typing, my jaw and face or aches and painful, rib pain which feels some times like I’m being stabbed in the chest, I can’t move my toes on my left foot, left arm and leg feel restless, pins and needles sensation are endless and seem to move around, deep intense aches in thigh and shoulder, balance is feeling off it’s strange to describe, along with a crippling fatigue which limits me to being unable to do much.

i was diagnosed by muscle biopsy with polymyositis (after having some strange CK levels a couple months earlier in) September last year, and treated initially as that although my symptoms weren’t classic symptoms and the treatment was ceased when the medications weren’t helping me. of people don’t normally have neurological issues and pain with it, therefore treatment was stopped and I was back to square one.

I’m currently seeing a Neuromuscular Specialist, Cardiolist, ophthalmologist, and seeing a Movement Disorder specialist tomorrow. Ps I’m sorry if this doesn’t make a great deal of sense it’s difficult for me to concentrate 

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