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Hi, I am new to this forum so thought I would give you some background before I ask questions.
I am a 39 year old female in the UK. I first had a flare up 10 years ago which was suspected gout in my big toe which developed to pain in my whole leg and I was off work for around 6 weeks. Tried all painkillers going but to no avail.
Then about 4 years later I started getting pain in my left hand and small joints, this then developed through my whole arm and again i was off work for around 6 weeks. In the meantime i was referred to rheumatology. They decided it was inflammatory arthritis but did not know the route cause and started me on hydroxycloriquine, 2 a day.
Last year about 4 weeks after a bout of tonislitis (which I suffer from) I developed same symptoms in my right arm and again this progressed up my arm, I asked about other medication as I didnt feel the hydroxycloriquine was not working for me and was told not to stop taking it. I was given a steroid injection which did not work and eventually had a steroid infusion (1g of prednisilone), which releaved symptons almost immediately. My diagnosis was then changed to Reactive Arthritis.
The decision was taken to remove my tonsils to prevent further flare ups and in February this year I had them removed.
Unfortunately in July I developed a water infection and sure enough 4 weeks later my right arm started to get sore, as I was due to go abroad I asked for a steroid infusion to prevent further flare which was agreed but a much smaller dose than last time (250mg) which has had no effect. I was however given Sulphasalizine to start as well as hydroxycloriquine and I am on my 3rd week on it taking 2 tablets per day, slowly building to 4 a day. I have had no side effects so far apart from feeling a bit nauseus at times. I am now on my 4th week off work and can still see no light at the end of the tunnel with the pain.I have been in contact with the hospital and they are refusing to go with another steroid infusion (which I feel is the only thing that relieves pain) and I have been told i need to wait for the Sulphasalizne to take effect!!
So my questions:
If you have been on or are on Sulphasalizine, how long was it before you started to see results?
also, should I keep calling Rheumatology and insist they give me an infusion as a) I feel like i am constantly pestering them, even though last year they told me not to suffer in silence. and b) I cant sit by and just wait for the meds to kick in when Ive read it can be up to 12 weeks to see any effect?
Any thoughts would be greatly appreciated. I just want to return to a normal life with my husand and 14 year old son as when I am not on a flare I feel fine but whilst having a flare everything just goes on hold.
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