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I have posted on here before but now I am really scared. I am 45 and my issues started last year with spotting after exercise. An US revealed a small fibroid and possibly a polyp but the 2 hysteroscopies I had failed to successfully remove it due to where it was in my tilted uterus. My periods had also started to get heavier although painless. Two biopsies came back clear so the specialist suggested it was hormonal and I was put on the progesterone only pill (Cerazette). I had my first really scary bleeding episode in Feb, just before starting the pill. It was the last day of my period which was nearly stopping and then I started flooding and couldn't leave the toilets in McDonalds for ages. We were out shopping in a different town and I felt awful, thought I'd have to go to A&E but eventually stopped it after taking ibuprofen which seems to work for me.
Soon after this I started taking this pill which made my periods longer and I was also either spotting or bleeding almost every day. I am quite annoyed with my GP who doesn't seem to care, told me it's quite normal for your period to affect your life and refused a blood test, telling me to just take some over the counter iron. She didn't even warn me that the most common side effect of this pill is frequent bleediing. So I took this for 3.5 months, reading everything there was on the internet about how it is meant to settle after 3-6 months and tried really hard to put up with it. I bled almost the whole time, with just 10 clear days but 10 days ago I had another really scary bleed. It was uncontrollable and took ages to stop. I had to sit on the toilet for ages as the thickest sanitary towels would not contain it for more than a few minutes. I am also a teacher and this was really stressing me out as I was living in constant fear that it will happen during a lesson. I was taking ibuprofen or transexamic acid which controls it but you can't take these forever.
Then last Friday I had another episode at work, the worst by far. I had to dash out of class and just couldn't stop bleeding. It was really scary. I was passing massive clots and just couldn't move away from the bathroom. Had to use a tena lady and my friend drove me home. I called the surgery who offered me an appointment at 4pm (it was 10.30 am) or told me to go to A&E. I was really scared and called 111 who sent an ambulance as my heart rate was through the roof and I was short of breath.
By that point I'd taken a lot of transexamic acid which eventually worked but the whole thing lasted 90mins and was the scariest time of my life. I don't remember childbirth being that bad and I'm sure I didn't bleed as much. I was put on a drip and admitted to a ward but because the bleeding had subsided, they didn't perform any procedures. They also couldn't refer me directly so had to write to my GP and told me to call them on Tue and chase it up as they would need to urgently refer me. I was put on Utovlan which is norethisterone and this stopped the bleeding straight away but I only have a 10 day course and am already dreading what would happen when I stop it. Surgery are supposed to prescribe me a lower maintenance dose the Dr said but they are so uncaring and all they want to do is give me the coil which I am not keen on.
Really sorry about long post but would love to hear from someone who's been through something similar. I am scared of drastic procedures but over the weekend have decided that I want a hysterectomy as this has been going on for far too long. It stopped me running and exercising which is something I love and now it's stopping me from doing my job which I also love. I have been signed off for a week, possibly longer, and scared to leave the house in case it starts again. I am also quite aneamic as a result and keep getting out of breath after just a few steps (was finally prescribed high dose iron tablets for this).
Any similar experiences and advice will be much appreciated. This thing has taken over my life and I hate it :*(
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