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Super size fibroid and nerve problems!

Posted , 3 users are following.

Glennie68
Glennie68

I've been on about this before - but I could do with advice from someone who has been in the same boat and has had a hysterectomy. I found out yesterday that my fibroid is about the size of a coconut - and my uterus is the size of a grapefruit - so some serious fruit invading my body! I have no problems with bleeding at all - but I have some pretty awful back pain and bowel issues due to where the fibroid/ uterus are sitting. I have had quite a few months of horrendous constipation - and loss of feeling in my rectum - which is getting gradually worse. This can lead to very embarrasing situations - where if I don't go to the toilet when I feel I need to pass wind - I could mess myself! Not great! Have talked to my GP (I am contantly on laxatives - fibroid is partially obstructing my bowel) - and she says that all will go back to normal post hysterectomy - she says the problem lies with my nerves being pressed too - sending the wrong signals to my back passage!  Anyone else had this and had the hysterectomy? Did everything go back to normal in time??

Thanks in advance!

0 likes, 4 replies

4 Replies

  • carol66967
    carol66967 Glennie68

    Posted

    I had a 14 cm fibroid that gave me a lot of pain I had a full hysterectomy last September and I lost a lot of weight after as the fibroid made me look pregnant. All went well I had keyhole surgery and it took around 3 weeks to heal.
    • Glennie68
      Glennie68 carol66967

      Posted

      I know I am having a full abdominal hysterectomy including removal of the one ovary I have left - position and size of fibroid make it difficult for any other way - I was diagnosed after an MRI scan - so I think it will be more than 3 weeks recovery for me! I'm pretty sure I will lose weight too - I feel huge! 

  • Creedes
    Creedes Glennie68

    Posted

    Hi i started off with 2 fibroids measured through Ultra Sound Tha ksgiving od 2016 one was 7mm and other one was 10mm. The size of baseballs. My OBGYN said i am A symthomatic you dont have to do anything...Less than 2 months later i was doing dishes and a gush of urine came out also i noticed that my stomach was looking real big and i was beginnibg to look pregnant. My OB scheduled me to see Fetal Diagnostic Specialist to measure my Uterus. To their suprise my biggest fibroid grew in size from 700 grams to 1400 grams and my uterus was the size of a 20 week baby plus on thw right sisw od my uterus i had a mass of something that was making my right ovary look fuuny. All together i had a 1400 gram fibroid with a walll of fibroids anorher fibroid that look like a head with a pony tail and finally the huge mass of unknown matter. Becuause of the rapis growth of tje fibroid i was sheduled for an emergency hysterectomy...They removed my fibroids rhat sytarted to press up against my lungs, my cervix, and my fallopian tubes...Yes surgery is painful but it was worth it my stomach is flat....Still waiting to hear results about the big mass, but fibroids all gone no cancer and no periods hope this helps you
    • Glennie68
      Glennie68 Creedes

      Posted

      Thanks for replying! I'm glad to hear the surgery has helped you - I am a bit worried about the op - but I really can't keep going on the way things are now! I know how painful operation recovery can be - this will be my third surgery (second abdominal). I just want to get 'control' back in my bottom! That and an end to backache which has seriously cut my travel down - can't sit on some seats for more than a few minutes without excruciating pain. Pain killers are the only way I can cope right now. Hope your recovery continues to be good!

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