Support group for those with any form of LP

Posted , 2 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

As someone who has lived with oral and vulval LP since end 2003, I understand more than most how isolating it is to live with a disease most people haven't heard of!

So I would encourage you all to join the UK's online support group for LP; UK Lichen Planus.

Once you are a member you can join the forum and there are many people with all forms of LP all sharing tips ideas and experiences. Anyone with any form of LP is able to join us and I would look forward to welcoming you.

Why not take a look at UKLP.org.uk - naturally we support the work of Patient UK

0 likes, 4 replies

Report

4 Replies

  • Posted

    I have had this vulval condition for about 2 years but have only been diagnosed and treated within the last 6 months. Dermovate cream does the trick for me but the condition returns after a while. Sex is out of the quesion and while I'm suffering life is pretty uncomfortable. Does anyone have any tips for treating the dreadful soreness while waiting for the cream to start working? Has anyone tried Vasolene?
    Report
  • Posted

    Hallo Colpen!

    If you have LP you should join the uk lichen planus group where you will get so much support and information. Name of the forum is UKLP.org.uk.

    There is a barrier ointment that is very good where the soreness is concerned. It is called Paladin ointment. You can order it from another message board called ****. Many many women use this ointment and it really helps. The lady who runs this message board is extremely informative ahd helpful. Good Luck Colpen

    [color=green:c4c158e7f6][size=9:c4c158e7f6][b:c4c158e7f6][i:c4c158e7f6](Sorry but Patient Admin have removed either a telephone number, an email address, a postal address and or web address, from this posting, as it is the policy of Patient UK not to publish these on this forum.

    If you wish to communicate directly with people, you should register, for free, with the forum (click Register in the menu list below the green banner above). You and other registered members will then be able to communicate with each other via Private Messaging (PM) or e-mail.) [/i:c4c158e7f6][/b:c4c158e7f6][/size:c4c158e7f6][/color:c4c158e7f6]

    Report
  • Posted

    Hallo Pink Ginger!

    I have joined the group you recommended. Yes it is a brilliant group. Thank you for taking the time to advise us of this groups existence. Will talk to you there!!

    Report
  • Posted

    Hallo Pink Ginger!

    I have joined the group you recommended. Yes it is a brilliant group. Thank you for taking the time to advise us of this groups existence. Will talk to you there!!

    Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up