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Support Group Volunteers

Posted , 7 users are following.

nikki1230
nikki1230

Hi. Does anyone know if the states have Herpes support groups like through churches or health dept? I don't know where to start my research so since it's a sensitive issue I thought I'd check here first. I want to support those new to all this in a person to person anonymous group if there is such a thing.

Thanks

0 likes, 14 replies

14 Replies

  • Guest
    Guest nikki1230

    Posted

    That would be so awesome and helpful! I would definitely go to something like that if offered or out there
    • nikki1230
      nikki1230 Guest

      Posted

      Me too! I'd love to help those new to all this.
    • Kate1552
      Kate1552 nikki1230

      Posted

      I wish I did know of something like that. There are so many of us struggling with this. I would love to have someone to talk to face to face.
  • Alexinator
    Alexinator nikki1230

    Posted

    Same here, if you do end up finding or starting something like that let us all know. A lot of us would benefit of just talking to eachother and knowing eachother

  • Topp
    Topp nikki1230

    Posted

    I'm in the states. I would love to have a group to support me in person. I'm still trying to get answers about this as I still haven't had an official OB, just ALL the other symptoms of it. I'm at the doctors office now getting blood work done but they're not specialized in this and I'm sure I got it mid january. I'm sick of feeling like I'm in limbo. I had a blister on my face/lip on saturday but it's gone now by the time I'm in doctors office of course. They're sending me to an allergist but I don't think that's what it is. I mean I guess I'm a little hopeful but mostly not. These docs try n act like I'm over reacting and I'm like no, I know my body n something is not right. I would LOVE support.
  • Guest
    Guest nikki1230

    Posted

    I'm in the US too ha lets do it
    • Guest
      Guest nikki1230

      Posted

      Ha I'm in WI for work, my place I rent is in CO and I travel to CA frequently!
  • Toodone
    Toodone nikki1230

    Posted

    since it appears we are all in different parts of the country, maybe we could start off with weekly conference calls and create support brochures to be distributed to our local ob offices and when the interest increases (from all the newly diagnosed) in your prospective area, then we could coordinate an in person support group meeting to run concurrent with the conference calls. Who knows, this could be the start of something big. Maybe Have infectious disease doctors volunteer at each meeting to answer questions from a medical/scientific perspective. Maybe then, we can get answers to really important questions like: if 1 in 4 women; and 1 in 5 men are infected with this, why is it not included on the standard std panel? Why do they not test if youre not having symptoms when they already know 80% of us are asymptomatic. If 20-25% of the people have this why would it not be considered an epidemic? If 80% of the people who are infected have zero recognizable symptoms, why would the medical industry and cdc just stand by and do or say nothing...this information is well documented but not one knows about it until after they have been infected. If anyone else is interested, I'm in.

    BTW: Sorry for the vent.

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