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I came on here not knowing who else to talk to without biased opinions from my family and my closest friends have struggles of their own. Does anyone else find issues with support are not helping? That CFS Sufferers have enough to go through daily?
I have had CFS for atleast five years, am currently seeking help and this has been the worst year by far. In the last month alone I have caught a sick bug, had severe neck pain and lastly had a cold ontop of the condition.
It seems everytime I have a support meeting my husbands support lasts for a short time (If it arises at all) and then he plays a guilt trip and goes completely the other way. The last group we stopped off and got a drink after because I was thirsty and he said we would sit down and try to find a time to talk about it and since then it has been all about his work and what he needs and about how good it would be if I worked full time. I have been incredibly supportive and looking after him but I just dont feel like I get that support back.It makes me so unhappy I wonder if its worth even going to the group in the first place to avoid it. And i know that people can say why are you still with him but its just like saying to people with cfs why are you lazy, we are all tired.
Where do you find all find support to help cope? Fight the battle on your own or does anyone have that special someone?
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