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  3. Ulcerative Colitis

Surgery

Posted , 2 users are following.

tina1148
tina1148

has anyone any experience of surgery for uc. I have been referred to a surgeon and he is telling me that I would need a surgery first to remove my colon to see if I have crohns even though I've been diagnosed with uc? then I would have surgery to remove the disease. he is also saying that I might not be able to have a pouch because my schfinkter muscles are weak. however the test came back as fine. he is now saying that I might not be able to have the pouch when he does the surgery and I will wake up and find out if this is the case. he is also saying that even if I have a pouch I will never get back to normal. I was referred to a professor Carlson at Salford hospital but they have ignored my referral and referred me to Mr Soop instead. my mind is in turmoil with it all.

0 likes, 4 replies

4 Replies

  • Darasdad1
    Darasdad1 tina1148

    Posted

    HI Tina1148 - I had my colon removed over 3 years ago then the rectal stump a year later. I decided not to have a pouch because, quite simply, they're a nightmare when they go wrong and I didn't want to take that chance at the age of 60. My life is better than before and managing a stoma is straightforward. I can do anything I did before and am drug free. You will inevitably hear that a J Pouch is a solution but my advice would be not to listen to third parties. Get as much information as you can and make a clear headed decision. Personally I'm happy with my decision.

    • tina1148
      tina1148 Darasdad1

      Posted

      hi thankyou fir your advice. it is the thought of having a bag for the rest if my life that is putting me if surgery. I need surgery but I'm scared. it's a mine field

    • Darasdad1
      Darasdad1 tina1148

      Posted

      tina1148 - I was also terrified too but had no choice because there was a danger of my colon becoming toxic. It's major surgery. All I'm saying is that, whatever you decide, you'll be better off. Many of my neighbors do not even know I have a stoma. I feel for you but promise things will improve following surgery. Be strong.

    • tina1148
      tina1148 Darasdad1

      Posted

      Thank you for your reply. I'm glad that things have improved for you. I do not have a choice either and thank you for your words of encouragement.

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