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Surgery after topical failures?

Posted , 4 users are following.

jj2013B
jj2013B

Months of clob - fail

Elidel, Protopic (weeks) - slight if any difference.

Worsening in new areas and no short-term response to clob or oral steroids.

So . . . at what point do people say "remove the skin and graft?" They do glans resurfacing which is the only thing to get rid of male penile LS in people who showed no improvement with all the other treatments. I already have very little sensitivity because of my total tight circumcision so I hate to think what a graft would do. The literature says the men feel high intensity sex as before but they had frenulum (unaffected by glans resurfacing). I would have no frenulum and no glans (not that my glans feels anything right now).

What type of skin surgery do women have done? I read about the vulva? What about vagina or clitoris?

0 likes, 4 replies

4 Replies

  • susan43705
    susan43705 jj2013B

    Posted

    Hi JJ, really sorry to hear what you are going through. It seems that there are 99% women on this particular forum. Have you thought of starting an LS forum for men? You might get better responses as far as experience with this dreadful condition. We are all searching for answers.

    Good luck JJ.

  • susan43705
    susan43705 jj2013B

    Posted

    Hi JJ, Just wanted to say in addition to my response below, that LS manifests itself differently with all of us to varying degrees. There is a surgery to remove the white thick scarring, but I hear it comes back. There is also the Mona Lisa Touch which you can google. Not sure if it works for men. Losing sensation down under is more than disappointing and I don't know if that comes back. I call LS a flesh eating disease. Parts keeps disappearing. It requires being mindful every day and trying different things, Nancy KB on this forum has oodles of information. You might look for her on here.

    Take care.

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